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Shéri Brynard has reached many remarkable milestones, although she was born with Down Syndrome. She talks about how love and acceptance from her family and friends formed her. She tells of her adventures, her pain and the harsh realities she has to face as an adult with Down Syndrome. Her mother tells the tale of living in Shéri’s shadow, speaking without holding back about her crisis of faith when she heard that her daughter had Down Syndrome. A touching tale.
In 2011 the world was shocked when the news broke that Joost van der Westhuizen, known for years as the golden boy of South African rugby and a former Springbok captain, had been diagnosed with motor neuron disease (MND).
This rare condition attacks the central nervous system, causing progressive disability. There is no known cure. All who have seen Joost in action will know that he is not one to give up without a fight. His game-changing prowess as a brilliant scrum half is now focused on a battle for survival and, more importantly, on making a difference to the lives of others with the disease. In a race against time, Joost has a dream to fulfil. He says: “In the beginning you go through all the emotions and you ask, ‘Why me?’ It’s quite simple. ‘Why not me?’ If I have to go through this to help future generations, why not me?” His acceptance of his symptoms is equally pragmatic: “One day you can’t move your arm, another day you don’t have speech. Every day you are reborn and you take the day as it comes.”
Glory Game – The Joost van der Westhuizen Story is a compelling narrative of redemption set against the backdrop of an illustrious career in rugby. It is the story of a modern-day warrior forced to face his own human frailty. Joost shows us that beyond ambition, success and fame lies the true wealth of family and friends, and that within a ravaged body the spirit can remain invincible.
When Lauren Segal receives a call from her husband one wintry morning in 2014, the furthest thing from her mind is her biopsy results. For two years she’s been living a cancer-free existence after a double mastectomy that has put her in the clear. The call shatters the foundation of her world – the lump she thought was scar tissue is malignant. Her cancer is back.
Cancer: A Love Story is the intimately searing memoir of a four-time cancer survivor. The book magnificently tracks Lauren’s journey to come to terms with the untold challenges of facing the dreaded disease. Forced to face her needle phobia, the author leads the reader into her crumbling world as she confronts the terrors of treatment – from debilitating chemo to nuking radiation. Death is her uninvited companion.
But in the midst of her lonely horror, in a quest for deeper meaning, Lauren discovers the unexpected gift of awareness of unanticipated opportunities that cancer presents – to confront her unmasked humanity – her fears, strengths and weaknesses.
“Throughout my arduous journey into the world of cancer, I have discovered that proximity to death brings with it a new proximity to life. I have learned that luck and unluck, happiness and distress, hope and despair are tightly coiled into a life well lived.” Lauren’s story removes the enormous stigma that still surrounds breast cancer; it tackles the deep fear surrounding diagnoses and treatment and it encourages us to take control of our health. It ultimately triumphs by showing the reader how a person in any unwanted life situation can come out on the other side. The book also provides vital insights for professionals involved in the care of cancer patients and a hugely informative section on chemo tips for those undergoing treatment.
Since the first edition of HIV and AIDS Education, Care and Counselling was published almost 20 years ago, it has become the standard handbook in Africa for thousands of HIV and AIDS practitioners. However, ongoing HIV and AIDS research requires regular revisions to the handbook for it to remain current with developments in prevention and treatment. Consequently, this new edition has been updated with input from two new specialist co-authors. This has strengthened the multicultural and multidisciplinary approach of this edition to Africa's unique challenges. Key features: A new design that improves readability and accessibility; In situ definitions and explanations of key terms and concepts; An updated glossary of important HIV and AIDS terminology; and Terminology, Frequently Asked Questions and Enrichment boxes that provide insight into specific aspects of HIV and AIDS prevention and treatment. Key updates: This edition includes a wealth of new information for healthcare practitioners on nursing care principles covering co-infections and complications of HIV infection and ART; infection control; and management of TB, drug-resistant TB, STIs and comorbidities. Specifically, the sixth edition includes: The latest ARV protocols in South Africa; The WHO's best practice suggestions; ART treatment as prevention; HIV, TB and STI prevention and management for schoolchildren, aligned with the Department of Basic Education's Life Skills and Life Orientation criteria; Development of children and adolescents from traditional, communal or collectivistic backgrounds; and The Dual Process Model (DPM), focusing on the latest research in bereavement counselling.
When someone's diagnosed with cancer they need an immediate game plan to fight the disease, especially once the oncologist prescribes a course of treatment of chemotherapy and/or radiation. Oftentimes these treatments have dangerous consequences. Current international research shows without a strong nutritional foundation, a patient's odds of surviving these treatments - let alone beating cancer - are greatly reduced.
However, patients receiving the proper balance of healthy foods, vitamins and minerals, and selected nutritional supplements show a striking increase in the effectiveness of their chemotherapy and radiation treatments. Cancer and current cancer treatments wage war on the body, but Russell L. Blaylock, M.D. - a respected doctor and clinical assistant professor of neurosurgery - has developed an easy-to-follow program to fight back naturally.
Natural Strategies for Cancer Patients shows how easy it can be to fortify nutritional status during this critical time. Patients can learn: which everyday foods have uncommon cancer-fighting properties and how best to prepare them; which supplements can help-or hurt-their chances; how certain fats and oils enhance their body's natural defences; the exciting promise of plant chemicals called flavonoids, which enhance the effectiveness of chemotherapy while adding a significant layer of protection to healthy cells; and much more.
In haar bykans 35 jaar het Shéri Brynard merkwaardige mylpale bereik ten spyte van die feit dat sy as baba met Trisomie-21-Downsindroom gediagnoseer is. Sy vertel hoe die liefde en aanvaarding van diegene naaste aan haar, veral haar ma, Susette, haar gevorm het.
Sy deel met die leser die opwindende avonture op haar pad, die seerkry, vrees, en verliese (die grootste hiervan die dood van haar pa, Jerry), asook die werklikhede waarmee sy as ’n volwassene met Downsindroom gekonfronteer word. Dan gesels haar ma oor ’n lewe in die skaduwee van ’n kind met Downsindroom. Sy deel openhartig haar geloofstryd toe sy gehoor het haar kind het Downsindroom en haar en haar dogter se reis die onbekende in. Shéri – Nes ek is is ’n boek wat grense verskuif, want soos Shéri tereg vra: “Wat is nou eintlik normaal?”
Dié boek herinner die leser juis dat ons as kinders van God elkeen ons volle potensiaal kan bereik, ongeag die uitdagings waarvoor ons te staan kom.
What's a mother to do when her high-achieving boy - adored by his close-knit family and private school community - turns bully overnight? How is she to know that his sudden headaches and vomiting are far more serious than all the doctors insist? The Twinkling of An Eye ?is the true, life-affirming memoir of a mother's harrowing but heroic fight against her son's rare brain tumour. Brown tells her story with courage, humour and heart. Hers is a revealing, frank and deeply affecting story of the light that shines even in the darkest of places.
A revolutionary and definitive new approach to preventing breast cancer, from Board-certified world authority on breast health Dr. Kristi Funk, co-founder of the renowned Pink Lotus Breast Centre, and surgeon to Angelina Jolie and Sheryl Crow. Breasts: An Owner's Manual is a straight-talking, myth and misconception-busting, strategy-filled guide to breast health. Sharing the latest on lifestyle choices that impact your risk factor including food, supplements, hormones and exercise, Dr. Funk demonstrates that you are so much more in control of whether or not you get breast cancer than you could ever dare to think. In fact, unless you carry a genetic mutation associated with breast cancer, the choices you make in your-day-to-day life trumps genetics and family history when it comes to breast cancer risk, every time. Including a unique long-term risk reduction plan for every woman based on her needs, as well as the latest on diagnosis and treatment for women living with and surviving breast cancer, and with a heartfelt Foreword from longtime patient Sheryl Crow, this is a book with a life-saving message for the 1 in 8 women, at the time of writing, who are set to be diagnosed in their lifetime.
Can you imagine not being able to speak or communicate? The silence, the loneliness, the pain. But, inside you disappear to magical places, and even meet your best friend there. However, most of the time you remain imprisoned within the isolation. Waiting, longing, hoping. Until someone realises your potential and discovers your key, so your unlocking can begin. Now you are free, flying like a wild bird in the open sky. A voice for the voiceless. Jonathan Bryan has severe cerebral palsy, a condition that makes him incapable of voluntary movement or speech. He was locked inside his own mind, aware of the outside world but unable to fully communicate with it until he found a way by using his eyes to laboriously choose individual letters, and through this make his thoughts known. In Eye can Write, we read of his intense passion for life, his mischievous sense of fun, his hopes, his fears and what it's like to be him. This is a powerful book from an incredible young writer whose writing ability defies age or physical disability - a truly inspirational figure. Foreword by Sir Michael Morpurgo A portion of the proceeds from the sale of this book will be donated to Jonathan Bryan's charity, Teach Us Too. http://www.teachustoo.org.uk/
Few side effects of cancer treatment are more feared by patients than nausea and vomiting. Failure to control these symptoms on the first day of chemotherapy increases the risk of them occurring on subsequent days and in subsequent cycles of chemotherapy, and can often result in patients refusing further cancer treatment. Very effective antiemetics are available to prevent this from happening, but do you know how best to use them? Fast Facts: Chemotherapy-Induced Nausea and Vomiting presents the evidence for the clinical agents that can prevent CINV, along with the recommendations for their use in various clinical settings using recently established international guidelines. Correct administration of prophylactic antiemetics in relation to the emetogenicity of the chemotherapy being given not only improves patients' quality of life during treatment but also adherence to subsequent cancer treatments, thus improving overall outcomes. This refreshingly readable handbook is therefore a must-read resource for all health professionals in a position to make this kind of a difference.
A proven 21-day diet and lifestyle plan to help women with polycystic ovary syndrome (PCOS) take back control of their health and resolve their symptoms from a certified health coach and founder of the large PCOS Diva online community. PCOS is one of the most common hormonal disorders, and the most common cause of female infertility, affecting roughly five million American women. Because it's symptoms are widespread-including stubborn weight gain, acne, mood swings, abnormal hair loss or growth, and irregular menstrual cycles-women suffering from PCOS are often misdiagnosed and treated with "Band-Aid" pharmaceuticals with uncomfortable side effects that only mask PCOS's root causes. While there is no cure for PCOS, women can learn to control their symptoms naturally. In this welcome guide, Amy Medling shows how to combine an anti-inflammatory and hormone-balancing diet, daily movement, and stress-reducing self-care to successfully treat their PCOS. Grounded in the latest medical research and filled with the knowledge she's acquired dealing with PCOS herself and working with thousands of women, Healing PCOS offers women small, manageable steps that help alleviate their symptoms and control the inflammation, hormonal imbalance, and insulin resistance that underlie the condition. Amy's revolutionary program consists of: A 21-day anti-inflammatory, hormone-balancing and gluten-free meal plan, including meal prep and plan-ahead tips to make eating this way simple and fast 85 delicious recipes-half fan favorites and half new dishes Daily self-care exercises, including meditation and journaling prompts Amy has helped tens of thousands of women with PCOS take back control of their health and their lives through lasting, healing, and sustainable lifestyle change. Whether you're newly diagnosed or have struggled with PCOS, her revolutionary program can now work for you.
I have been exiled from my body. I was ejected at a very young age and I got lost. Playwright, author and activist Eve Ensler has devoted her life to the female body - how to talk about it, how to protect and value it. Yet she spent many years disassociated from her own - a disconnection brought on by her father's sexual abuse and her mother's remoteness. While working in the Congo, Ensler is shattered to encounter the horrific rape and violence inflicted on the women there. Soon after, she is diagnosed with uterine cancer, and through months of treatment she is forced to become first and foremost a body - pricked, punctured, cut, scanned. It is then that all distance is erased. As she connects her own illness to the devastation of the earth, her life force to the resilience of humanity, she is finally, fully - and gratefully - joined to the body of the world.
Many of us are affected by allergies, from the dreaded hayfever - the scourge of the summer - to much talked-about food allergies such as lactose and gluten. Dr Mike Dilkes, one of Harley Street's top Consultant ENT Surgeons, reveals his top tips for living with and treating an allergy. - Find out the difference between a sensitivity, an intolerance and an allergy - Discover how allergies affect your body and why - Learn how to see through the hype and take control of your own symptoms - Prevent attacks and treat outbreaks With a no-nonsense approach to this controversial topic, Stop Allergies from Ruining Your LIfe... The Easy Way provides a straightforward analysis ofthe latest scientific research, allowing you to live the life you want, whatever the season.
The revolutionary, science-based plan to reclaim your health "You have cancer." These are perhaps the most feared three words that will ever come out of a doctor's mouth, and more and more people are hearing them. Yet most patients (and some doctors) do not realize that lifestyle changes can dramatically reduce risk, assist treatment and improve chances of surviving and even thriving after a diagnosis. Over the course of a major study Servan-Schreiber designed with Dr Lorenzo Cohen at the MD Anderson Cancer Center, six key areas have emerged: love and social support, stress management, rest, movement, nutrition and avoiding environmental toxins. Each plays a role--but it's the synergies created by this potent "Mix of Six" that can bring about real shifts in health and well-being, significantly improving quality of life and positively supporting conventional cancer treatments. Dr. David Servan-Schreiber's Anticancer introduced a revolutionary way to understand and confront cancer, changing the lives of millions around the world. He laid out the principles of integrative care that had allowed him to live many years beyond expectations for his own cancer, but readers have long requested a specific plan to implement his approach. Anticancer Living is that book.
What is it like to encounter cancer? How does it feel to face the unknown, to enter a world of hope, loss, and dread? From the diagnosis of his childhood friend's mother to his poignant memories in the lab, David Scadden's seen the unknown world of cancer from the lens of a young boy, a classmate, a researcher, a friend, a doctor, and a neighbour. Scadden chronicles his personal memories of cancer - his visits to his sick neighbour and his classmate who left school and never came back. Now Dr. David Scadden, co-founder of the Harvard Stem Cell Institute and one of the world's leading experts on immunology and oncology, writes his memoir, Cancerland, with Pulitzer Prize-winning journalist Michael D'Antonio. With riveting stories and moving compassion, Scadden and D'Antonio paint a still rapidly changing landscape in the context of all too common stories of loss. Ranging from Scadden's personal childhood memories to his triumphs and regrets as a doctor, Scadden illuminates a light at the end of a dark tunnel. Through opening a window into the science of medicine in the world of the unknown, Scadden and D'Antonio humanize cancer while inspiring action that we all so desperately need.
'One of those books that makes you look at everything human in a new, challenging and thrilling way' Stephen Fry 'Brilliantly conveys the excitement of scientific discovery' Bill Bryson The immune system holds the key to human health. In The Beautiful Cure, leading immunologist Professor Daniel Davis describes the scientific quest to understand how it works - and how it is affected by stress, sleep, age and our state of mind - and explains how this knowledge is now unlocking a revolutionary new approach to medicine and well-being. The body's ability to fight disease and heal itself is one of the great mysteries and marvels of nature. But within the last few years painstaking research has resulted in major advances in our understanding of this breathtakingly beautiful inner world: a vast and intricate network of specialist cells, regulatory proteins and dedicated genes that are continually protecting our bodies. Far more powerful than any medicine ever invented, it also plays a crucial role in our daily lives. Already we have found ways to harness these natural defences to create breakthrough drugs and so-called immunotherapies that help us fight cancer, diabetes, arthritis and many age-related diseases, and we are starting to understand whether or not activities such as mindfulness might play a role in enhancing our physical resilience. Written by an expert at the forefront of this adventure, The Beautiful Cure tells a dramatic story of detective work and discovery, of puzzles solved and of the mysteries that remain, of lives sacrificed and saved, introducing the reader to this revelatory new understanding of the human body and what it takes to be healthy.
TNM Classification of Malignant Tumours eighth edition provides the latest, internationally agreed-upon standards to describe and categorize cancer stage. * Published in affiliation with the Union for International Cancer Control (UICC) * Arranged by anatomical region, this authoritative pocket sized guide contains many important updated organ-specific classifications * There are new classifications for p16 positive oropharyngeal carcinomas, carcinomas of the thymus, neuroendocrine tumours of the pancreas, and sarcomas * To facilitate the collection of stage data for cancer surveillance in low and middle income countries there are new sections on Essential TNM and Paediatric Cancer Stage * New colour presentation
A book about choices. A book to empower all cancer sufferers and their families. In March 2011 Laura Bond's mother Gemma was diagnosed with ovarian and uterine cancer. Laura discovered that the only thing more shocking than telling someone your mother has cancer was revealing that she had declined chemotherapy. But, according to studies, many oncologists would do the same. So Laura, a journalist, started writing a blog to explain her mother's decision to say 'no' to mainstream medicine and 'yes' to hydrogen peroxide, vitamin C injections and infrared saunas. Mum's Not Having Chemo shares Gemma's natural healing story as well as advice from over 60 of the world's leading cancer specialists and holistic healers - from oncologists in Tokyo to energy healers in Harley Street. If you want to explore alternative options, or find ways to supplement your conventional care, this book provides cutting edge research from around the world and describes treatments road-tested by Gemma and other cancer survivors. It's an invaluable and uplifting companion to help you make the best choices for your own healing journey.
This book describes the biomedical information of albinism to determine the disability of the genetic disorder in albinism (Chapter 1).
Secondly, it describes the international and regional frameworks of disability (Chapter 2). Thirdly, it analyses the human rights perspective of disability as related to albinism (Chapter 3). Human rights apply to all human beings regardless of disability, and focus will be on the relevant Convention on the Rights of Persons with Disabilities. Fourthly, the book demonstrates the understanding of albinism through beliefs, cultures and superstitions (Chapter 4).
The book suggests a way forward, intending to provide some suggestions and recommendations to improve the life of person with disabilities in general and albinism in particular (Chapter 5).
Finally, the role of non-governmental organisations is analysed - which is to raise awareness, boost the self-esteem of their members, advocate for their needs and possibly lobby for an inclusive society (Chapter 6).
When Malaysia Airlines flight MH17 was shot down by pro-Russian rebels in July 2014, the world wondered if a cure for HIV had fallen from the sky and disappeared among the burning debris. Seated in the plane's business-class cabin was Joseph Lange, better known as Joep, a shrewd Dutch doctor who had revolutionized the world of HIV and AIDS and was working on a cure. Dr. Lange graduated from medical school in 1981, right as a new plague swept across the globe. His story became intertwined with the story of HIV. At once a physician, scientist, AIDS activist, and medical diplomat, Lange studied ways to battle HIV and prevent its spread from mother to child. Fighting the injustices of poverty, Lange advocated for better access to health care for the poor and the vulnerable. He championed the drug cocktail that finally helped rein in the disease and was a vocal proponent of prophylactic treatment for those most at risk of contracting HIV. The Impatient Dr. Lange is the story of one man's struggle against a global pandemic-and the tragic attack that may have slowed down the search for a cure. Seema Yasmin charts the course of the HIV epidemic and Dr. Lange's career as a young doctor who blazed his own path and dedicated his life to HIV. Yasmin draws on written records, medical journals, recorded discussions, expert testimony, and extensive interviews with Lange's family, friends, and colleagues around the globe-including the people he spoke to in the days before he died. She faithfully reconstructs key scenes from Lange's life and the history of the AIDS epidemic, revealing how Lange became a global leader in the fight against AIDS. The first book about Lange and his contributions to the fight against HIV, The Impatient Dr. Lange is a powerful tribute to one of the greatest scientists, activists, humanitarians, and social entrepreneurs in the world of HIV/AIDS.
The untold story of how hereditary data in mental hospitals gave rise to the science of human heredity In the early 1800s, a century before there was any concept of the gene, physicians in insane asylums began to record causes of madness in their admission books. Almost from the beginning, they pointed to heredity as the most important of these causes. As doctors and state officials steadily lost faith in the capacity of asylum care to stem the terrible increase of insanity, they began emphasizing the need to curb the reproduction of the insane. They became obsessed with identifying weak or tainted families and anticipating the outcomes of their marriages. Genetics in the Madhouse is the untold story of how the collection and sorting of hereditary data in mental hospitals, schools for "feebleminded" children, and prisons gave rise to a new science of human heredity. In this compelling book, Theodore Porter draws on untapped archival evidence from across Europe and North America to bring to light the hidden history behind modern genetics. He looks at the institutional use of pedigree charts, censuses of mental illness, medical-social surveys, and other data techniques--innovative quantitative practices that were worked out in the madhouse long before the manipulation of DNA became possible in the lab. Porter argues that asylum doctors developed many of the ideologies and methods of what would come to be known as eugenics, and deepens our appreciation of the moral issues at stake in data work conducted on the border of subjectivity and science. A bold rethinking of asylum work, Genetics in the Madhouse shows how heredity was a human science as well as a medical and biological one.
From the Wellcome Prize-winning author of It's All in Your Head Brainstorm examines the stories of people whose symptoms are so strange even their doctor struggles to know how to solve them. A man who sees cartoon characters running across the room; a teenager who one day arrives home with inexplicably torn clothes; a girl whose world turns all Alice in Wonderland; another who transforms into a ragdoll whenever she even thinks about moving. The brain is the most complex structure in the universe, and neurologists must puzzle out life-changing diagnoses from the tiniest of clues - it's the ultimate in medical detective work. In this riveting book, one of the UK's leading neurologists takes you with her as she follows the trail of her patients' symptoms: feelings of deja vu lead us to a damaged hippocampus; spitting and fidgeting to the right temporal lobe; fear of movement to a brain tumour; a missed heart beat to the limbic system. It's a journey that will open your eyes to the unfathomable intricacies of the brain, and the infinite variety of human capacity and experience. Praise for It's All in Your Head `As addictive as a great box set, makes you rethink some of your closest relationships and wonder about some of the people you know best; and above all, like all truly great books, it is about love and compassion' Satnam Sanghera, The Times `Remarkable... It should be on the reading list of every medical student' P.D. Smith, Guardian `An extraordinary book... an important one too' Kathryn Hughes, Mail on Sunday `Read this book' British Medical Journal
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