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"A patient is standing in the middle of the river. He gazes across the water to the city and the mountain above where the sun is setting. His back is turned to the hospital. The nurses are waiting for him patiently on the river bank. He seems uncertain whether to cross the river or to return. There is no danger. He is on the edge, in an in-between space, as is the hospital where I have worked as a specialist psychiatrist for over twenty-five years."
For many of us, what lies beyond conventional portrayals of mental illness is often shrouded in mystery, misconception and fear. Dr Sean Baumann spent decades as a psychiatrist at Valkenberg Hospital and, through his personal engagement with patients’ various forms of psychosis, he describes the lived experiences of those who suffer from schizophrenia, depression, bipolar and other disorders.
The stories told are authentic, mysterious and compelling, representing both vivid expressions of minds in turmoil and the struggle to give form and meaning to distress. The author seeks to describe these encounters in a respectful way, believing that careless portrayals of madness cause further suffering and perpetuate the burden of stigma.
Baumann argues cogently for a more inclusive way of making sense of mental health. With sensitivity and empathy, his enquiries into the territories of art, psychology, consciousness, otherness, free will and theories of the self reveal how mental illness raises questions that affect us all.
Madness is illustrated by award-winning artist Fiona Moodie.
"Why walk when you can soar..."
These are the opening words on Tracy Todd’s website and they are a powerful affirmation of the person Tracy is today – a sought-after inspirational speaker whose uplifting presentations have inspired and given hope to many people. But it is difficult to imagine what she has overcome in a tough and often lonely journey.
At the age of twenty-eight her life was turned upside down when a horrific road accident left her a quadriplegic, paralysed from the neck down. Her life as an athletic, marathon-running young mother and teacher was abruptly shattered. Despite months of rehabilitation, Tracy often found herself wondering if her life was worth living. Everything she had taken for granted was now beyond her reach and frustration at her helplessness threatened to overwhelm her. Against the odds, Tracy chose to live.
Her strength of character and determination prevailed and, sustained by the support of her son, family and friends, her care assistants, and an unbelievably caring community, she set about gaining the independence to rebuild her life and reclaim her identity – which she has done, with dignity and grace. Brave Lotus Flower Rides The Dragon is an honest, inspiring and engaging memoir in which Tracy’s natural warmth and humour are tangible and, most importantly, she embodies what the human spirit can achieve.
This brand new book addresses disability issues, including inclusive education, advocacy and empowerment. Aimed specifically at students studying in South Africa, this book attempts to plug the gap between policy, services and rights for disabled people in South Africa, whilst also helping readers to find a new world view. This book is suitable for both first year undergraduates in inclusive education and senior students and also academics looking to advance theory and lay good foundations for comprehensive, evidence-based practice.
Disability Rhetoric is the first book to view rhetorical theory and history through the lens of disability studies. Traditionally, the body has been seen as, at best, a rhetorical distraction; at worst, those whose bodies do not conform to a narrow range of norms are disqualified from speaking. Yet, Dolmage argues that communication has always been obsessed with the meaning of the body and that bodily difference is always highly rhetorical. Following from this rewriting of rhetorical history, he outlines the development of a new theory, affirming the ideas that all communication is embodied, that the body plays a central role in all expression, and that greater attention to a range of bodies is therefore essential to a better understanding of rhetorical histories, theories, and possibilities.
Every Christian is called to and gifted for ministry. The church canaand mustaengage all of its members if it is to flourish fully. Far too often, persons with intellectual disabilities are excluded. While members with disability areoften recipients of the church's ministry, they are seldom given the opportunity to reciprocate: persons with disability are not always fully empowered to minister. In Pastoral Care and Intellectual Disability , Anna Katherine Shurley asserts the church's need for mutuality in pastoral care. While the shape of each person's vocation is unique, all members of the body of Christ are created for ministry with one another as partners in spiritual care. In a quest for pastoral care that is fundamentally collaborative and fully inclusive, Shurley turns to the psychology of D. W. Winnicott and to Karl Barth's theology of Christian vocation. From this combination, she crafts person-centered pastoral care for the body of Christ and all its members, with or without intellectual disabilities. Person-centered pastoral care recognizes that people with intellectual disabilities can and must participate as partners in the church. Faith communities, Shurley suggests, can foster collaborative ministry by nurturing pastoral friendships among its membership. These sacred friendships are spaces in which people share their lives with one another as a truly collaborative practice of care. Through these pastoral friendships mediated by the presence of the Holy Spirit, all of God's children can livetheir particular vocations. By engaging person-centered practices of pastoral care, the church strengthens its witness and truly becomes a place of belonging for all people.
If you are looking for an incisive overview of current thinking and practice in the field of learning disabilities, then this is the book for you. Written by a highly experienced team of authors, this handy pocket-sized guide succinctly captures the fundamental ideas in policy and practice that currently dominate the field of learning disabilities. With a strong grounding in ethics and values, the book focuses on the experience of people with learning disabilities through examination of topics such as discrimination, communication and assistive technology, as well as promoting readers' understanding of key areas such as care planning, accommodation and application of the Human Rights Act 1998. With explicit 'Implications for Practice' points and extensive signposting to further reading, A-Z of Learning Disabilities is an essential resource not only for students and practitioners in learning disability nursing or social work, but also teachers, policymakers, families and anyone who lives with, or whose work brings them into contact with, people who have learning disabilities.
Born Without Legs, She Inspires Others to Overcome
Jen Bricker was born without legs. Shocked and uncertain they could care for her, her biological parents gave her up for adoption. In her loving adoptive home, there was just one simple rule: never say "can't". And pretty soon there was nothing this small but mighty powerhouse set her sights on that she couldn't conquer: roller-skating, volleyball, power tumbling, and spinning from silk ribbons 30 feet in the air.
Everything Is Possible is her incredible story - a story of God working out his plan for her life from before day one. Listeners follow Jen from the challenges of growing up different to holding captive audiences numbering in the tens of thousands. Everything Is Possible shows listeners what they can accomplish when they remove the words coincidence and limitation from their vocabularies. Filled with heart and spirit as well as Jen's wit, wisdom, and no-holds-barred honesty, this inspiring true story points the way to purpose and joy.
Foreword by Nick Vujicic.
Amit Patel is working as a trauma doctor when a rare condition causes him to lose his sight within thirty-six hours. Totally dependent on others and terrified of stepping outside with a white cane after he's assaulted, he hits rock bottom. He refuses to leave home on his own for three months. With the support of his wife Seema he slowly adapts to his new situation, but how could life ever be the way it was? Then his guide dog Kika comes along . . .
But Kika’s stubbornness almost puts her guide dog training in jeopardy – could her quirky personality be a perfect match for someone? Meanwhile Amit has reservations – can he trust a dog with his safety? Paired together in 2015, they start on a journey, learning to trust each other before taking to the streets of London and beyond. The partnership not only gives Amit a renewed lease of life but a new best friend. Then, after a video of an irate commuter rudely asking Amit to step aside on an escalator goes viral, he sets out with Kika by his side to spread a message of positivity and inclusivity, showing that nothing will hold them back.
From the challenges of travelling when blind to becoming a parent for the first time, Kika & Me is the moving, heart-warming and inspirational story of Amit’s sight-loss journey and how one guide dog changed his world.
This book describes the biomedical information of albinism to determine the disability of the genetic disorder in albinism (Chapter 1).
Secondly, it describes the international and regional frameworks of disability (Chapter 2). Thirdly, it analyses the human rights perspective of disability as related to albinism (Chapter 3). Human rights apply to all human beings regardless of disability, and focus will be on the relevant Convention on the Rights of Persons with Disabilities. Fourthly, the book demonstrates the understanding of albinism through beliefs, cultures and superstitions (Chapter 4).
The book suggests a way forward, intending to provide some suggestions and recommendations to improve the life of person with disabilities in general and albinism in particular (Chapter 5).
Finally, the role of non-governmental organisations is analysed - which is to raise awareness, boost the self-esteem of their members, advocate for their needs and possibly lobby for an inclusive society (Chapter 6).
The atonement-where God in Jesus Christ addresses sin and the whole of the human predicament-lies at the heart of the Christian faith and life. Its saving power is for all people, and yet a deep hesitancy has prevented meaningful discussion of the cross' relevance for people with disabilities. Speaking of disability and the multifaceted concept of the atonement has created an unresolvable tension, not least because sin and disability often seem to be associated within the biblical text. While work in disability theology has made great progress in developing a positive theological framework for disability as an integral part of human diversity, it has so far fallen short of grappling with this particular set of interpretive challenges presented by the cross.In Accessible Atonement, reflecting on his experience as both a pastor and a theologian, David McLachlan brings the themes and objectives of disability theology into close conversation with traditional ideas of the cross as Jesus' sacrifice, justice, and victory. From this conversation emerges an account of the atonement as God's deepest, once-for-all participation in both the moral and contingent risk of creation, where all that alienates us from God and each other is addressed. Such an atonement is inherently inclusive of all people and is not one that is extended to disability as a "special case." This approach to the atonement opens up space to address both the redemption of sin and the possibilities of spiritual and bodily healing. What McLachlan leads us to discover is that, when revisited in this way, the cross-perhaps surprisingly-becomes the cornerstone of Christian disability theology and the foundation of many of its arguments. Far from excluding those who find themselves physically or mentally outside of assumed "norms," the atoning death of Christ creates a vital space of inclusion and affirmation for such persons within the life of the church.
Since the defeat of the Nazi Third Reich and the end of its horrific eugenics policies, battles over the politics of life, sex, and death have continued and evolved. Dagmar Herzog documents how reproductive rights and disability rights, both latecomers to the postwar human rights canon, came to be seen as competing-with unexpected consequences. Bringing together the latest findings in Holocaust studies, the history of religion, and the history of sexuality in postwar-and now also postcommunist-Europe, Unlearning Eugenics shows how central the controversies over sexuality, reproduction, and disability have been to broader processes of secularization and religious renewal. Herzog also restores to the historical record a revelatory array of activists: from Catholic and Protestant theologians who defended abortion rights in the 1960s-70s to historians in the 1980s-90s who uncovered the long-suppressed connections between the mass murder of the disabled and the Holocaust of European Jewry; from feminists involved in the militant ""cripple movement"" of the 1980s to lawyers working for right-wing NGOs in the 2000s; and from a handful of pioneers in the 1940s-60s committed to living in intentional community with individuals with cognitive disability to present-day disability self-advocates.
A disabled foreigner in Japan, a society historically hostile to difference, Kenny Fries finds himself on a journey of profound self-discovery. As he visits gardens, experiences Noh and butoh, and meets artists and scholars, he discovers disabled gods, one-eyed samurai, blind chanting priests, and atomic bomb survivors. When he is diagnosed as HIV positive, all his assumptions about Japan, the body, and mortality are shaken, requiring him to find a way to reenter life on new terms.
In this accessible introduction to the study of Disability Arts and Culture, Petra Kuppers foregrounds themes, artists and theoretical concepts in this diverse field. Complete with case studies, exercises and questions for further study, the book introduces students to the work of disabled artists and their allies, and explores artful responses to living with physical, cognitive, emotional or sensory difference. Engaging readers as cultural producers, Kuppers provides useful frameworks for critical analysis and encourages students to explore their own positioning within the frames of gender, race, sexuality, class and disability. Comprehensive and accessible, this is an essential handbook for undergraduate students or anyone interested in disabled bodies and minds in theatre, performance, creative writing, art and dance.
"No matter how old you are or how many degrees you have or don't have--when grace takes you to school, you start in kindergarten." This was the experience of Reverend Glandion Carney when he was given the life-altering news that he has Parkinson's disease. He was plunged into denial and despair. This was not supposed to be his journey. How could he face it? With poignant vulnerability, The Way of Grace describes one man's journey into a new land of God's amazing grace. Both his honesty and his resilience will inspire and inform your own times of difficulty. In each chapter we are introduced to a spiritual practice that can carry us through difficult days: acceptance, relinquishment, community, simplicity and more. And a guide at the end of each chapter carries us into a brief and refreshing experience with each of the practices. God's unmerited grace saves us, strengthens us and sanctifies us. We too can experience lives full of grace and truth, courageously searching out God's wonders every day.
Joy, pain, celebration, and grief are constant companions on the journey of caregiving. While remaining detached might seem the preferable option, it is not possible to disentangle the threads of our interwoven stories. Our lives are shaped by each other. We are transformed by our encounters.In Formed Together, Keith Dow explores the questions of why we should, and why we do, care for one another. He considers what it means for human beings to be interdependent, created in the image of a loving God. Dow recounts personal experiences of supporting people with intellectual disabilities while drawing upon theological and philosophical sources to discover the ethical underpinnings of Christian care. Formed Together reveals that human beings care for one another not merely by choice, but because every person relies upon others. People are called together in mutually formative practices of care, and human flourishing means learning to care well. Dow suggests five virtues that mark ethical caregiving, such as humble courage and quiet attentiveness. These practices can help guide caregivers in responding to the divine call to care. Dow demonstrates that ethical practices of care do not depend upon intelligence or rational ability. Many are called to the vocation of tending to and being present in the needs of others. To be formed together in the divine image means that caregivers never entirely comprehend themselves, others, or God. Rather, caring well means that humans are to accompany one another in and through experiences of profound mystery and revelation.
This book relates the founding in America, and evaluates the effectiveness of, a branch of the worldwide organization of volunteers known as the Samaritans, committed to the prevention of suicide through the simple means of "listening therapy." Great-granddaughter of Charles Dickens, Monica Dickens was best known in England as a novelist; in America, as the founder of the U.S. Samaritans. Today Samaritans are in every large city of the country. Volunteers work twenty-four hours a day, answering telephones or meeting troubled people, to try to give them, in nonjudgmental ways, the help they need to get their lives back in order.
From the liberation of the electric wheelchair to the ignominy of discrimination and incarceration, there have been both great advances and terrible setbacks for disabled people in Britain over the last fifty years. Hard-hitting and hilarious, personal and poignant, CripTales comprises six fictional monologues portraying some very real experiences. From negotiating friendships and personal assistants, navigating the benefits system, and experiencing sexual fulfilment, they challenge the view that having a disability is a problem or 'not normal'. Normal doesn't exist! CripTales was commissioned by the BBC and broadcast on BBC Four and BBC America in 2020 to mark the twenty-fifth anniversary of the UK's Disability Discrimination Act, which criminalised discrimination against disabled people in many areas of life. The production had disabled people at its core - as writers, directors and actors of all six monologues. Mat Fraser, the series' Creative Director, said, 'Disabled voices have been shut out of mainstream TV drama for too long and this is a chance to showcase some of the wonderful, inventive, funny, dramatic, sexy and sobering potential available... We called the series CripTales, as the word 'crip' has been taken by the disabled community as a self-empowering title since the late '80s, and these are authentic stories and tales from people who identify as Deaf and Disabled people and who are embedded in disabled community.'
In a tradition extending from the medieval era to the early twentieth century, visually disabled Japanese women known as goze toured the Japanese countryside as professional singers and contributed to the vitality of rural musical culture. The goze sang unique narratives (many requiring several hours to perform) as well as a huge repertory of popular ballads and short songs, typically accompanied by a three-stringed lute known as the shamisen. During the Edo period (1600-1868) goze formed guild-like occupational associations and created an iconic musical repertory. They were remarkably successful in fighting discrimination accorded to women, people with physical disabilities, the poor, and itinerants, using their specialized art to connect directly to the commoner public. The best documented goze lived in Echigo province in the Japanese northwest. Although their activities peaked in the nineteenth century, some women continued to tour until the middle of the twentieth. The last active goze survived until 2005. In Goze: Blind Women and Musical Performance in Traditional Japan, author Gerald Groemer argues that goze activism was primarily a matter of the agency of performance itself. Groemer shows that the solidarity goze achieved with the rural public through narrative and music was based on the convergence of the goze's desire to achieve social autonomy and the wish of lower-class to mitigate the cultural deprivation to which they were otherwise so often subject. It was this correlation of emancipatory interests that allowed goze to flourish and attain a degree of social autonomy. Far from being pitied as helpless victims, goze were recognized as masterful artisans who had succeeded in transforming their disability into a powerful social tool and who could act as agents of widespread cultural development. As the first full-length scholarly work on goze in English, this book is sure to prove an invaluable resource to scholars and students of Japanese culture, Japanese music, ethnomusicology, and disability studies worldwide.
The last thing Piedro remembers is diving into the lake on his day off from work. Now he lies in a hospital bed with a wheelchair at his side. Casting a shadow from the doorway, his caretaker remarks on "how quickly one gets used to this kind of thing," as she goes on to empty his catheter bag and to help him into his wheelchair. Piedro must now deal with a growing mix of fear and powerlessness that surges within him as he realizes that he will be paralyzed forever; it bursts forth like a twister, "over and over again," until he resigns himself to it. In time, Piedro's feelings of hopelessness are offset by the realization that he can find both love and a degree of independence. With the support of his family and friends, he makes his way through rehab and finally gets back to the business of living. Based on his own experiences, Roland Burkart's Twister is a realistic and uplifting narrative that will resonate with anyone who has ever experienced or borne witness to a life upended by calamity.
Having gone through 30 years of development, the new edition of this highly-regarded classic is the most trusted companion for understanding and promoting the potential for social work with disabled people. It offers readers a clear introduction to the core issues of disability alongside discussion and assessment of the social worker's role. Written by an experienced and highly respected team of authors, the book reflects: * the latest updates, developments and policy changes * the broad range of areas needing to be understood for informed practice * recent changes to the focus of social work education and practice * the Social Model of Disability, encouraging debate about its role in social work * developments for independent living * the heightened importance of safeguarding issues, giving attention to the topical issue of disabilist hate crime. Accessible to a broad readership and respected by disabled people themselves, this text is the foundation for effective practice.
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