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Native Americans suffer disproportionately from many social and health disparities. High rates of poverty, exposure to environmental toxins, and various forms of violence all increase the risk of health problems, including disabilities, yet there is very little published scholarship concerning Native American experiences with disabilities. In collecting contributions on various aspects of disability in Native American populations in one volume, this book seeks to redress this lack of attention. Writing about regions of the United States, Canada, and Australia, and spanning a diverse range of settings from remote rural areas, to reservations, to college campuses, the authors are attentive to the impact of specific environments on their inhabitants. Taking into account both physical and social environment, and recognizing the importance of cultural context, this book is a good starting point for anyone interested in developing a better understanding of the experience of Native peoples living with disabilities. This book was originally published as a special issue of the Journal of Social Work in Disability & Rehabilitation.
Disability and Digital Television Cultures offers an important addition to scholarly studies at the intersection of disability and media, examining disability in the context of digital television access, representation and reception. Television, as a central medium of communication, has marginalized people with disability through both representation on screen and the lack of accessibility to this medium. With accessibility options becoming available as television is switched to digital transmissions, audience research into television representations must include a corresponding consideration of access. This book provides a comprehensive and critical study of the way people with disability access and watch digital TV. International case studies and media reports are complimented by findings of a user-focused study into accessibility and representation captured during the Australian digital television switchover in 2013-2014. This book will provide a reliable, independent guide to fundamental shifts in media access while also offering insight from the disability community. It will be essential reading for researchers working on disability and media, as well as television, communications and culture; upper-level undergraduate and postgraduate students in cultural studies; along with general readers with an interest in disability and digital culture.
This fully updated third edition contains practical and useful advice that will be invaluable for students with dyslexia, their parents and all of those involved in teaching and supporting them in their studies. Including the latest research into dyslexia, changes in legislation and information technology and the real-life experiences of six former Bangor students this book will: * guide students through the process of applying for university, suggesting strategies for general organisation and for particular aspects of study * outline how to get the best personally and academically from higher education * give practical advice on setting up and using support facilities (both human and technological) * be an accessible text for mainstream lecturers and tutors who need to be aware of the implications of the Disability Discrimination Act. New chapters include 'Dyslexia plus', giving information on dyspraxia, attention disorders, Asperger's syndrome, and the more controversial 'dyscalculia'. 'Out of College and into Work' gives advice for students on the challenges they face after graduation.
How can a deep engagement with disability studies change our understanding of sociology, literary studies, gender studies, aesthetics, bioethics, social work, law, education, or history? Interdisciplinary Approaches to Disability (the companion volume to Manifestos for the Future of Critical Disability Studies) identifies both the practical and theoretical implications of such an interdisciplinary dialogue and challenges people in disability studies as well as other disciplinary fields to critically reflect on their professional praxis in terms of theory, practice, and methods. Topics covered include interdisciplinary outlooks ranging from media studies, games studies, education, performance, history and curation through to theology and immunology. Perspectives are drawn from different regions from the European Union to the Global South with chapters that draw on a range of different national backgrounds. Our contributors who write as either disabled people or allies do not proceed from a singular approach to disability, often reflecting different or even opposing positions. The collection features contributions from both established and new voices in international disability studies outlining their own visions for the future of the field. Interdisciplinary Approaches to Disability will be of interest to all scholars and students working within the fields of disability studies, cultural studies, sociology, law history and education. The concerns raised here are further in Manifestos for the Future of Critical Disability Studies.
This book on Relationality addresses our growing "crisis of connection" by foregrounding the multi-faceted ways in which we are interconnected with each other and the world in which we live. When Niobe Way and her collaborators first proclaimed such a "crisis" in their 2018 book The Crisis of Connection: Roots, Consequences, and Solutions, they could not have foreseen the extremes of isolation and disconnection that Covid-19 would unleash just a couple of years later. Importantly, what such experiences of impaired and compromised relationality impress upon us-now more powerfully than ever-is just how fundamentally we are intertwined with each other and the world we inhabit. The ten scholarly chapters assembled here, combined with ten specially commissioned poems, emphasise the significance of these relational entanglements. They draw on a range of thinkers (with Emmanuel Levinas playing a particularly prominent role) to bring relationality into conversation with an array of contemporary paradigms and areas of political concern: the Anthropocene, post-humanism, neoliberalism, disability studies, and postcolonialism (to name but a few). Tracing the various challenges and opportunities associated with our relational existence, they collectively consider the role relationality plays, or might play, in our increasingly less-than-relational lives. The chapters and poems in this book were originally published as a special issue of Angelaki.
Cruel Compassion is the capstone of Thomas Szasz's critique of psychiatric practices. Reexamining psychiatric interventions from a cultural-historical and political-economic perspective, Szasz demonstrates that the main problem that faces mental health policy makers today is adult dependency. Millions of Americans, diagnosed as mentally ill, are drugged and confined by doctors for noncriminal conduct, go legally unpunished for the crimes they commit, and are supported by the state - not because they are sick, but because they are unproductive and unwanted. Obsessed with the twin beliefs that misbehavior is a medical disorder and that the duty of the state is to protect adults from themselves, we have replaced criminal-punitive sentences with civil-therapeutic 'programs.' The result is the relentless loss of individual liberty, erosion of personal responsibility, and destruction of the security of persons and property - symptoms of the transformation of a Constitutional Republic into a Therapeutic State, unconstrained by the rule of law. Szasz shows convincingly that not until we separate therapy from coercion - much as the founders separated theology from coercion - shall we be able to get a handle on our seemingly intractable psychiatric and social problems. No contemporary thinker has done more than Thomas Szasz to expose the myths and misconceptions surrounding insanity and the practice of psychiatry. Now, in Cruel Compassion, he gives us a sobering look at some of our most cherished notions about our humane treatment of society's unwanted, and perhaps more importantly, about ourselves as a compassionate and democratic people.
Disability is a complex multidimensional social construct where the type of disability and the level of support of individuals needs to be considered within leisure provision. In a leisure context, people with a disability often face a multitude of constraints to participation. However, when leisure is possible, the benefits are substantial and worth pursuing. While other marginalised populations have received a great deal of attention across disciplines and in the field of leisure and recreation, disability has received comparatively less attention and generally in isolation to the leisure context. This book concentrates on "disability citizenship in leisure". The chapters focus on examining the leisure lives of people with different types of disability by supporting their leisure endeavours through innovations in technology, service provision and the imagination. Each chapter has a different social setting, involves different groups of people with disability, and challenges conventional wisdom about what is possible when ability is seen, nurtured and, then, flourishing with the opportunities provided. Rather than leisure being seen in isolation, the context of this book explores leisure as part of everyday lives of people with disabilities whether that be part of promoting inclusive practices across University basis, invoking an innovative technology of Photovoice to allow people with intellectual disability to provide insight into their hopes and dreams of community living, maintaining mental health in refugees through innovative leadership programs or how people with traumatic brain injury can regain autonomy through the arts. We situate the book in the context of further challenging researchers to think beyond disability as a context in their research and engagement of the person as a citizen in leisure opportunities, as opposed to a disability. This book was published as a special issue of Annals of Leisure Research.
Incapacity and Theatricality acknowledges the distinctive contribution to contemporary theatrical performance made by actors with intellectual disabilities. It presents a close examination of certain key theatrical performances across a variety of different media, including John Cassavetes' 1963 social issues film A Child Is Waiting; the performance art collaboration between Robert Wilson and Christopher Knowles; and the provocative pranksterism of Christoph Schlingensief's talent show mockumentary FreakStars 3000. Tracing a global path of performances, Incapacity and Theatricality offers an analysis of how actors with intellectual disabilities have emerged onto the main stage, and how their inclusion calls into question long-held assumptions about both theatre and intellectual disability. For postgraduate students, or anyone interested in the shifting dynamics of twenty-first century theatre, McCaffrey's work offers a vital consideration of the intersubjective relations between people with and without intellectual disabilities and ultimately addresses urgent questions about the situation and representation of the contemporary subject caught up somewhere between incapacity and theatricality.
Offering readings of a range of fictional and biographical texts, including work by Richard Selzer, Nathaniel Hawthorne, Gaston Leroux, Willa Cather, Natalie Kusz, and Lucy Grealy, this book examines reactions to facially disfigured people on the basis of Emmanuel Levinas' ethics of the face. Drawing on Levinas' concern with the holistic dimension of the face as an encounter with the other's "whole person" and the sense of moral obligation that this instils in us-a sense that disfigurement disrupts by drawing our attention to the disfigurement as a "spectacle" and threatening to limit our view of that individual-the author explores how we react to the facially disfigured and how we ought to react.
First published in 1999, this volume examines the inclusion of disabled children as a category of children in need under the Children Act 1989 and as eligible for assessments of need under the NHS and Community Care Act 1990 has drawn renewed attention to the plight of these children and their families. This book presents the findings from a study of parents whose child has cerebral palsy. The research undertaken at the cost of social policy change focuses on the apparent gap between the well-argued proposals for community care and the experiences of carers. A bewildering picture emerges of inadequate services and treatments from the health, education and social services in the public, voluntary and private sectors. Parents experience isolation and stress as they explore ways to improve the quality of their children's lives by experimenting with unregulated and under-researched treatments for an incurable physical condition. The conclusion that there has been deterioration in provision for these families is a serious indictment on current social policy direction.
Cultural Heritage, Ageing, Disability, and Identity examines the effects of disability and ageing on engagement with cultural heritage and associated cultural identity formation processes. Combining theory with detailed case study research, it unpicks both the current state of play and future directions. The book is based upon detailed case example research on both the self-reported individual experiences of people with disabilities engaging with cultural heritage, and the accessibility approaches of cultural heritage institutions themselves. Hayhoe grounds the analysis in a theoretical and historical overview of disability and inclusion. He interrogates the various ways in which identity is formed through interaction with cultural heritage, and considers the differences in engagement with cultural heritage amongst those who develop disabilities early in life compared to those who acquire disabilities later in life. His conclusions offer insights that can help improve the provision of cultural heritage engagement to all people, but particularly those with disabilities. Cultural Heritage, Ageing, Disability, and Identity is key reading for students and scholars of cultural heritage, visitor studies, and disability studies, and will also be of interest to other subject areas engaging with issues of accessibility. It should also be read by institutions looking to improve their accessibility strategy to engage broader audiences.
The essays in this volume discuss racism and sexism as they affect mental health. In particular, they focus on training, diagnosis, treatment, and research, emphasizing the power relationships between individuals and groups that cause unequal access to mental health care. They offer perspectives on issues and their distinct effects on mental health: interracial adoptions, teenage motherhood, gender bias in mental health diagnosis and therapy, prisons used as substitutes for hospitals, homeless families, and increasing violence- in the home, on college campuses, and in the streets.
This book is about the employment of people with disabilities in the United States and the important role of employer practices. Nearly one in five people report some form of disability, and they are only half as likely to be employed as those without disabilities. With the aging workforce and returning military veterans both contributing to increasing number of disabilities in the workplace, there is an urgent need for better ways to address continuing employment disparities for people with disabilities. Examining employer behaviors is critical to changing this trend. It is essential to understand the factors that motivate employers to engage this workforce and which specific practices are most effective. Disability and Employer Practices features research-based documentation of workplace policies and practices that result in the successful recruitment, retention, advancement, and inclusion of individuals with disabilities. The Cornell team whose work is featured in this book drew from multiple disciplines, data sources, and methodologies to learn where employment disparities for people with disabilities occur and to identify workplace policies and practices that might remediate them. The contributors include individuals with expertise in the fields of business, economics, education, environmental design and analysis, human resources, management, industrial/organizational psychology, public health, rehabilitation psychology, research methods, survey design, educational measurement, statistics, and vocational rehabilitation counseling.
Fleeing from Nazi Europe in the late 1930s, Austrian-born Karl Koenig and his colleagues founded the first Camphill community, for children with special needs, outside Aberdeen in the north of Scotland. The seven essays by Koenig in this book explain the principles behind what would grow to become a worldwide movement. The insights in this book reveal the inner motivations that drove Koenig and his team to persevere with their social project, and help modern-day readers to understand how they succeeded in building a network that now numbers over one hundred communities in twenty countries around the world. Includes extensive diary excerpts, documents and photographs from the Karl Koenig Archive.
Uses literature to understand and remake our ethics regarding nonhuman animals, old human beings, disabled human beings, and cloned posthumans Literary Bioethics argues for literature as an untapped and essential site for the exploration of bioethics. Novels, Maren Tova Linett argues, present vividly imagined worlds in which certain values hold sway, casting new light onto those values; and the more plausible and well rendered readers find these imagined worlds, the more thoroughly we can evaluate the justice of those values. In an innovative set of readings, Linett thinks through the ethics of animal experimentation in H.G. Wells's The Island of Doctor Moreau, explores the elimination of aging in Aldous Huxley's Brave New World, considers the valuation of disabled lives in Flannery O'Connor's The Violent Bear It Away, and questions the principles of humane farming through reading Kazuo Ishiguro's Never Let Me Go. By analyzing novels published at widely spaced intervals over the span of a century, Linett offers snapshots of how we confront questions of value. In some cases the fictions are swayed by dominant devaluations of nonnormative or nonhuman lives, while in other cases they confirm the value of such lives by resisting instrumental views of their worth-views that influence, explicitly or implicitly, many contemporary bioethical discussions, especially about the value of disabled and nonhuman lives. Literary Bioethics grapples with the most fundamental questions of how we value different kinds of lives, and questions what those in power ought to be permitted to do with those lives as we gain unprecedented levels of technological prowess.
Almost fifteen per cent of the world's population today experiences some form of mental or physical disability and society tries to accommodate their needs. But what was the situation in the Roman world? Was there a concept of disability? How were the disabled treated? How did they manage in their daily lives? What answers did medical doctors, philosophers and patristic writers give for their problems? This, the first monograph on the subject in English, explores the medical and material contexts for disability in the ancient world, and discusses the chances of survival for those who were born with a handicap. It covers the various sorts of disability: mental problems, blindness, deafness and deaf-muteness, speech impairment and mobility impairment, and includes discussions of famous instances of disability from the ancient world, such as the madness of Emperor Caligula, the stuttering of Emperor Claudius and the blindness of Homer.
Efforts to reduce discrimination and increase diversity on campuses, coupled with shrinking budgets causing administrators to devote more resources toward recruiting and retaining students with disabilities, are fuelling an explosion of research in the area of inclusive education. An important focus that has been largely neglected is the place of teachers with disabilities in academe. International Perspectives on Teaching with Disability brings together 25 multi-disciplinary scholars with disabilities from Africa, Canada, the Caribbean, the UK, Israel and the United States to share their struggles and successes in teaching with disability. The 18 chapters are written largely from autoethnographic perspectives grounded in solid academic research but full of anecdotes and self-reflexive narratives that provide insights into the lived experiences of the authors. Woven into the narratives are discussions of the complexities of self-disclosure and self-advocacy; the varied-and often problematic-ways disability is experienced, perceived and discussed in society and in the classroom; the challenges of navigating academe with disability, the value of disability pedagogy, the positive student outcomes achieved by teaching through disability, as well as practical applications and lessons learned that will benefit educators, administrators and students preparing to become teachers. This book is written to champion the integral place and role of disabled educators in academe. Current educators with disability will be affirmed. Those with disability aspiring to become teachers will be encouraged. Temporarily able-bodied administrators and educators will be challenged. Everyone will be informed. This book will be a welcome addition to reading lists in a wide array of academic fields including: Education, Pedagogy, Disability Studies, Human Resources Management, and Sociology.
A crucial contemporary dynamic around children and young people in the Global North is the multiple ways that have emerged to monitor their development, behaviour and character. In particular disabled children or children with unusual developmental patterns can find themselves surrounded by multiple practices through which they are examined. This rich book draws on a wide range of qualitative research to look at how disabled children have been cared for, treated and categorised. Narrative and longitudinal interviews with children and their families, along with stories and images they have produced and notes from observations of different spaces in their lives - medical consultation rooms, cafes and leisure centres, homes, classrooms and playgrounds amongst others - all make a contribution. Bringing this wealth of empirical data together with conceptual ideas from disability studies, sociology of the body, childhood studies, symbolic interactionism and feminist critical theory, the authors explore the multiple ways in which monitoring occurs within childhood disability and its social effects. Their discussion includes examining the dynamics of differentiation via medicine, social interaction, and embodiment and the multiple actors - including children and young people themselves - involved. The book also investigates the practices that differentiate children into different categories and what this means for notions of normality, integration, belonging and citizenship. Scrutinising the multiple forms of monitoring around disabled children and the consequences they generate for how we think about childhood and what is 'normal', this volume sits at the intersection of disability studies and childhood studies.
This unique monograph, based on empirical research, used the oral history approach to explore the careers of 31 intellectual disability nurses from England and the Republic of Ireland; each with at least 30 years' experience. We sought to understand motives for such long service to nursing practice. Some had worked in the intellectual disability hospitals of the 19th and 20th Centuries. In both jurisdictions these have almost closed and been replaced with smaller living configurations; subsequently few such nurses have experience of these institutions. This makes it important to hear their stories, which were digitally recorded; now forming a unique collection in the Royal College of Nursing's archives. These oral histories when synthesised with prevailing discourse of intellectual disability nursing from literature, and research put into perspective contemporary nursing workforce challenges faced by these nurses in both jurisdictions. Their stories are testament, amongst other things, to a strong 'sense of justice... doing the right thing and making a difference'. Some reported a 'very early interest in working with people with intellectual disabilities'. And at 'journey's end' sadly, almost universally, they reported a sense of being 'undervalued'. Their narratives articulate enormous health and social care change witnessed over three decades or more. But above all else they give voice to commitment, dedication, and kindness to a vulnerable, and often marginalised people, those with intellectual disabilities, as such it gives voice to otherwise 'Untold Stories'.
Although it is commonly believed that deafness and disability limits a person in a variety of ways, Valuing Deaf Worlds in Urban India describes the two as a source of value in postcolonial India. Michele Friedner argues that the experiences of deaf people offer an important portrayal of contemporary self-making and sociality under new regimes of labor and economy in India. Friedner contends that deafness actually becomes a source of value for deaf Indians as they interact with nongovernmental organizations, with employers in the global information technology sector, and with the state. In contrast to previous political economic moments, deaf Indians increasingly depend less on the state for education and employment, and instead turn to novel and sometimes surprising spaces such as NGOs, multinational corporations, multilevel marketing businesses, and churches that attract deaf congregants. They also gravitate towards each other. Their social practices may be invisible to outsiders because neither the state nor their families have recognized Indian Sign Language as legitimate, but deaf Indians collectively learn sign language, which they use among themselves, and they also learn the importance of working within the structures of their communities to maximise their opportunities. Valuing Deaf Worlds in Urban India analyses how diverse deaf people become oriented toward each other and disoriented from their families and other kinship networks. More broadly, this book explores how deafness, deaf sociality, and sign language relate to contemporary society.
This Companion analyzes the representation of disability in literatures in English, including American and postcolonial writing, across all major time periods and through a variety of critical approaches. Through the alternative ideas of mind and embodiment generated by physiological and psychological impairments, an understanding of disability narrative changes the way we read literature. With contributions from major figures in literary disability studies, The Cambridge Companion to Literature and Disability covers a wide range of impairments, including cognitive difference, neurobehavioral conditions, and mental and chronic illnesses. This book shows how disability demands innovation in literary form and aesthetics, challenges the notion of a human 'norm' in the writing of character, and redraws the ways in which writing makes meaning of the broad spectrum of humanity. It will be a key resource for students and teachers of disability and literary studies.
In this innovative and important study, Heather Tilley examines the huge shifts that took place in the experience and conceptualisation of blindness during the nineteenth century, and demonstrates how new writing technologies for blind people had transformative effects on literary culture. Considering the ways in which visually-impaired people used textual means to shape their own identities, the book argues that blindness was also a significant trope through which writers reflected on the act of crafting literary form. Supported by an illuminating range of archival material (including unpublished letters from Wordsworth's circle, early ophthalmologic texts, embossed books, and autobiographies) this is a rich account of blind people's experience, and reveals the close, and often surprising personal engagement that canonical writers had with visual impairment. Drawing on the insights of disability studies and cultural phenomenology, Tilley highlights the importance of attending to embodied experience in the production and consumption of texts.
The first memoir written by a person with Down syndrome In this inspiring memoir, David Egan tells his own story, authentically describing a life of maximizing his abilities, as he advocates for himself and for all other people with disabilities. This book is yet another first in a life that has seen many firsts, a life buoyed by an optimistic perspective that refuses to be limited by stereotypes and the low expectations of others. As he says in the introduction, "You see there is an upside to Down. It has made me look at the words 'abilities' and 'disabilities' in a very different way than most of the world. A better way. A more inclusive way. A smarter way. I use the word 'smarter' very deliberately because one of the biggest perceptions of people with intellectual disabilities is that we are not smart." You will be quickly disabused of this faulty notion as you read David's impressive story. He has worked for more than twenty years for prestigious companies; he sits on the boards of two important advocacy organizations; he has addressed thousands of people as an advocate for people with disabilities; and he has competed in the Special Olympics. In describing his personal challenges and goals, he also conveys valuable lessons that apply to all people: the importance of a supporting family and friends; the need for others to see him and other people with disabilities as persons first, not just as examples of a diagnosis; the power of inclusion in school settings and community activities; the encouraging role that sports can play; the need for society to focus on our shared humanity despite differences; how to allow yourself to dream and to imagine possibilities; and much more. Concluding with an action plan detailing how individuals can discover their own abilities and how society can nurture those abilities, this is a book of hope that will encourage everyone to make the most of their lives.
From the liberation of the electric wheelchair to the ignominy of discrimination and incarceration, there have been both great advances and terrible setbacks for disabled people in Britain over the last fifty years. Hard-hitting and hilarious, personal and poignant, CripTales comprises six fictional monologues portraying some very real experiences. From negotiating friendships and personal assistants, navigating the benefits system, and experiencing sexual fulfilment, they challenge the view that having a disability is a problem or 'not normal'. Normal doesn't exist! CripTales was commissioned by the BBC and broadcast on BBC Four and BBC America in 2020 to mark the twenty-fifth anniversary of the UK's Disability Discrimination Act, which criminalised discrimination against disabled people in many areas of life. The production had disabled people at its core - as writers, directors and actors of all six monologues. Mat Fraser, the series' Creative Director, said, 'Disabled voices have been shut out of mainstream TV drama for too long and this is a chance to showcase some of the wonderful, inventive, funny, dramatic, sexy and sobering potential available... We called the series CripTales, as the word 'crip' has been taken by the disabled community as a self-empowering title since the late '80s, and these are authentic stories and tales from people who identify as Deaf and Disabled people and who are embedded in disabled community.'
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