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A forthright, honest and rousingly triumphant memoir from a woman who has to live with a highly visible different appearancedue to a rare skin condition. Say hello to Carly. 'In fairytales,the characters who look different are often castas the villain or monsters. It's only when they shed their unconventional skinthat they are seen as "good" or less frightening. There are very fewstories where the character that looks different is the hero of the story ... I've been the hero of mystory - telling it on my own terms, proud about my facial difference anddisability, not wanting a cure for my rare, severe and sometimes confrontingskin condition, and knowing that I am beautiful even though I don't have beautyprivilege.' This honest, outspoken and thought-provoking memoir by award-winning writer and appearance activist Carly Findlay will challenge all your assumptions and beliefs about what it is like to have a visibly different appearance. Carly lives with a rare skin condition, Ichthyosis, and what she faces every day, and what she has to live with, will have you cheering for her and her courage and irrepressible spirit. This is both a moving memoir and a proud manifesto on disability and appearance diversity issues. 'Believe the hype - by turns frank, funny, and fearsome, Findlay's extraordinary memoir is an early contender for 2019's best Australian non-fiction ... a powerful and moving invitation to examine the structures of privilege and dehumanisation that we so desperately need address in this country.' Better Read Than Dead 'A proud celebration of appearance difference ... a valuable read.' Herald Sun 'Defiant, unsettling and thought-provoking' The Age
Phil Fennell's tightly argued study traces the history of treatment of mental disorder in Britain over the last 150 years. He focuses specifically on treatment of mental disorder without consent within psychiatric practice, and on the legal position which has allowed it. Treatment Without Consent examines many controversial areas: the use of high-strength drugs and Electro Convulsive Therapy, physical restraint and the vexed issue of the sterilisation of people with learning disabilities. Changing notions of consent are discussed, from the common perception that relatives are able to consent on behalf of the patient, to present-day statutory and common law rules, and recent Law Commission recommendations. This work brings a complex and intriguing area to life; it includes a table of legal sources and an extensive bibliography. It is essential reading for historians, lawyers and all those who are interested in the treatment of mental disorder.
Grouped around four central themes - illness and impairment, disabling processes, care and control, and communication and representations - this collection offers a fresh perspective on disability research, showing how theory and data can be brought together in new and exciting ways. Disability Research Today starts by showing how engaging with issues around illness and impairment is vital to a multidisciplinary understanding of disability as a social process. The second section explores factors that affect disabled people, such as homelessness, violence and unemployment. The third section turns to social care, and how disabled people are prevented from living with independence and dignity. Finally, the last section examines how different imagery and technology impacts our understandings of disability and deafness. Showcasing empirical work from a range of countries, including Japan, Norway, Italy, Australia, India, the UK, Turkey, Finland and Iceland, this collection shows how disability studies can be simultaneously sophisticated, accessible and policy-relevant. Disability Research Today is suitable for students and researchers in disability studies, sociology, social policy, social work, nursing and health studies.
Our children mean the world to us. They are so central to our hopes and dreams that we will do almost anything to keep them healthy, happy, and safe. What happens, then, when a child has serious problems? In Family Trouble, a compelling portrait of upheaval in family life, sociologist Ara Francis tells the stories of middle-class men and women whose children face significant medical, psychological, and social challenges. Francis interviewed the mothers and fathers of children with such problems as depression, bi-polar disorder, autism, learning disabilities, drug addiction, alcoholism, fetal alcohol syndrome, and cerebral palsy. Children's problems, she finds, profoundly upset the foundations of parents' everyday lives, overturning taken-for-granted expectations, daily routines, and personal relationships. Indeed, these problems initiated a chain of disruption that moved through parents' lives in domino-like fashion, culminating in a crisis characterized by uncertainty, loneliness, guilt, grief, and anxiety. Francis looks at how mothers and fathers often differ in their interpretation of a child's condition, discusses the gendered nature of child rearing, and describes how parents struggle to find effective treatments and to successfully navigate medical and educational bureaucracies. But above all, Family Trouble examines how children's problems disrupt middle-class dreams of the ""normal"" family. It captures how children's problems ""radiate"" and spill over into other areas of parents' lives, wreaking havoc even on their identities, leading them to reevaluate deeply held assumptions about their own sense of self and what it means to achieve the good life. Engagingly written, Family Trouble offers insight to professionals and solace to parents. The book offers a clear message to anyone in the throes of family trouble: you are in good company, and you are not as different as you might feel.
Supporting Change in Autism Services explores the theoretical and practical dimensions of improving service provision for children, young people and adults with autism. The core aim of the book is to identify and critically examine some of the key factors that either facilitate or inhibit the implementation of good autism practice at both practitioner level and workplace level. It shows practitioners and students how to successfully translate autism theory into practice across service contexts and showcases a range of practitioner case studies throughout the text in order to illustrate effective implementation. Topics explored include: controversies and ambiguities in autism policy, theory and discourse; understanding autism in an inclusive context; enabling participation; making sense of behaviour; autism and interprofessionalism; strategic planning for autism friendly services; bridging the implementation gap. This book is essential reading for anyone interested in improving services for people with autism in the education, social care, health and voluntary sectors.
In the 1990s, Anne Meyer, David Rose, and their colleagues at CAST introduced universal design for learning (UDL), a framework to improve teaching and learning. Based on new insights from the learning sciences and creative uses of digital technologies. UDL can help educators improve and optimize learning experiences for all individuals. In this book, Meyer and Rose, along with David Gordon, provide the first comprehensive presentations of UDL principles and practices since 2002. This new look at UDL includes contributions from CAST's research and implementation teams, as well as their collaborators in schools, universities, and research settings. Universal Design for Learning: Theory & Practice includes: New insights from research on learner differences and how human variability plays out in learning environments Research-based discussions of what it means to become expert at learning First-hand accounts and exemplars of how to implement UDL at all levels and across subjects using the UDL Guidelines ""Dig Deeper"" segments that enrich the main content Dozens of original illustrations and access to videos and other online features at http://udltheorypractice.cast.org Opportunities to participate in a UDL community
The London 2012 Paralympic Games - the biggest, most accessible and best-attended games in the Paralympics' 64-year history - came with an explicit aim to "transform the perception of disabled people in society," and use sport to contribute to "a better world for all people with a disability." This social agenda offered the potential to re-frame disability; to symbolically challenge "ableist" ideology and to offer a reinvention of the (dis)abled body and a redefinition of the possible. This edited collection investigates what has and is happening in relation to these ambitions. The book is structured around three key questions: 1. What were the predominant mediated narratives surrounding the Paralympics, and what are the associated meanings attached to them? 2. How were the Paralympics experienced by media audiences (both disabled and non-disabled)? 3. To what extent did the 2012 Paralympics inspire social change? Each section of this book is interspersed with authentic "voices" from outside academia: broadcasters, athletes and disabled schoolchildren.
From Idiocy to Mental Deficiency is the first book devoted to the social history of people with learning disabilities in Britain. Approaches to learning disabilities have changed dramatically in recent years. The implementation of 'Care in the Community', the campaign for disabled rights and the debate over the education of children with special needs have combined to make this one of the most controversial areas in social policy today. The nine original research essays collected here cover the social history of learning disability from the Middle Ages through the establishment of the National Health Service. They will not only contribute to a neglected field of social and medical history but also illuminate and inform current debates. The information presented here will have a profound impact on how professionals in mental health, psychiatric nursing, social work and disabled rights understand learning disability and society's responses to it over the course of history.
This comprehensive collection provides a fascinating summary of the debates on the growth of institutional care during the nineteenth and twentieth centuries. Revising and revisiting Foucault, it looks at the significance of ethnicity, race and gender as well as the impact of political and cultural factors, throughout Britain and in a colonial context. It questions historically what it means to be mad and how, if at all, to care.
This book provides a comprehensive and interdisciplinary examination of disability, hate crime and violence, exploring its emergence on the policy agenda. Engaging with the latest debates in criminology, disability and violence studies, it goes beyond conventional notions of hate crime to look at violences in their myriad forms as they are seen to impact upon disabled people s lives.
Despite a raft of relevant policy and legislation, few have attempted to draw together research on the disabled as victims of hate crime and violence. This innovative volume conceptualizes issues of disability, hate crime and violence and connects empirical research with theoretical insights. Making links between criminal justice policy, social care and welfare, it highlights areas of best practice and makes suggestions for policy and legislative reform. Disability, Hate Crime and Violence is written in accessible language, with minimal jargon and an international focus. Each chapter is grounded in research and practice, with relevant policy and legislation clearly signposted throughout.
Disability, Hate Crime and Violence provides a much needed theoretical and practical investigation of the key issues around disabled hate crime and violence. It is an important work for students and academics researching and studying in disability studies, criminology, social policy and sociology, as well as those with an interest in domestic violence studies and broader historical and philosophical constructions of disability, violence and social harms."
In a unique way this study probes the linguistic, sociological, religious and theological issues associated with being physically disabled in the ancient Near East. By examining the law collections, societal conventions and religious obligations towards individuals who were physically disabled Fiorello gives us an understanding of the world a disabled person would enter. He explores the connection between the literal use of disability language and the metaphorical use of this language made in biblical prophetic literature as a prophetic critique of Israel's dysfunctional relationship with God. COMMENDATIONS "In this well-researched volume Michael Fiorello has made a significant contribution to the study of disability in the Bible in the context of its ancient Near Eastern world. Fiorello's work needs to be taken seriously in the church, the academy, and the world." - Richard E. Averbeck, Trinity Evangelical Divinity School, USA
For aspiring journalists, the challenges of dyslexia can seem insurmountable, especially in the face of an educational system that is ill-equipped to help. Many with dyslexia and related learning and attention deficit disorders also struggle with low self-esteem and emotional health, leading to the assumption that they cannot succeed, especially in a profession dominated by reading and writing. This book profiles famous broadcast journalists who overcame the long-overlooked, often misdiagnosed learning disability, dyslexia, to succeed at the highest level. Among them are Emmy Award winners, including CNN's Anderson Cooper and Robyn Curnow, NBC's Richard Engel, and ABC's Byron Pitts. For students and practicing journalists, it is a resource to learn more about dyslexia and how best to approach covering "the invisible disability." Each of the journalists profiled offer advice into the best practices in researching, interviewing, writing, and presenting issues related to dyslexia.
Family members provide the majority of care for individuals with disabilities in the United States. Recognition is growing that family caregiving deserves and may require societal support, and evidence-based practices have been established for reducing stress associated with caregiving. Despite the substantial research literature on family support that has developed, researchers, advocates and professionals have often worked in separate categorical domains such as family support for caregiving for the frail elderly, for individuals with mental illness, or for people with development disabilities.
Family Support and Family Caregiving across Disabilities addresses this significant limitation through cross-categorical and lifespan analyses of family support and family caregiving from the perspectives of theory and conceptual frameworks, empirical research, and frameworks and recommendations for improvements in public policy. The book also examines children with disabilities, children with autism, adults with schizophrenia, and individuals with cancer across the life cycle.
This book was published as a two-part special issue in the Journal of Family Social Work.
Over the past fifty years, design and branding have become omnipotent in the market and have made their way to other domains as well. Given their potential to divide humans into categories and label their worth and value, design and branding can wield immense but currently unharnessed powers of social change. Groups designed as devalued can be undesigned, redesigned and rebranded to seamlessly and equivalently participate in community, work and civic life. This innovative book argues that disability as a concept and category is created, reified, and segregated through current design and branding that begs for creative change. Transcending models of disability that locate it either as an embodied medical condition or as a socially constructed entity, this book challenges the very existence and usefulness of the category itself. Proposing and illustrating creative and responsible design, DePoy and Gilson include thinking and action strategies that are useful and potent for "undesigning", redesigning, and rebranding to meet the full range of human needs and to enhance full participation in local through global communities. Divided into two parts, the first section presents a critical examination of disability as a designed and branded phenomenon, exploring what exactly is being designed and branded and how. The second part investigates the redesign of disability and provides principles for redesign and rebranding illustrated with examples from high-tech to place-based sustainable strategies. The book provides a unique and contemporary framework for thinking about disability as well as providing relevant design and branding guidance to designers and engineers interested in embodiment issues.
Disability studies scholars and activists have long criticized and critiqued so-termed 'charitable' approaches to disability where the capitalization of individual disabled bodies to invoke pity are historically, socially, and politically circumscribed by paternalism. Disabled individuals have long advocated for civil and human rights in various locations throughout the globe, yet contemporary human rights discourses problematically co-opt disabled bodies as 'evidence' of harms done under capitalism, war, and other forms of conflict, while humanitarian non-governmental organizations often use disabled bodies to generate resources for their humanitarian projects. It is the connection between civil rights and human rights, and this concomitant relationship between national and global, which foregrounds this groundbreaking book's contention that disability studies productively challenge such human rights paradigms, which troublingly eschew disability rights in favor of exclusionary humanitarianism. It relocates disability from the margins to the center of academic and activist debates over the vexed relationship between human rights and humanitarianism. These considerations thus productively destabilize able-bodied assumptions that undergird definitions of personhood in civil rights and human rights by highlighting intersections between disability, race, gender ethnicity, and sexuality as a way to interrogate the possibilities (and limitations) of human rights as a politicized regime.
Disability, Obesity and Ageing offers an engaging account of a new area of pressing concern, analysing the way in which 'spurned' identities are depicted and reacted to in televisual genres and online forums. Examining the symbolic power of the media, this book presents case studies from drama, situation comedies, reality and documentary television programmes popular in the UK, USA and Australia to shed light on the representation of disability, obesity and ageing, and the manner in which their status as unwanted and unwelcome identities is perpetuated. A theoretically sophisticated exploration of television as a translator of identity, and the exploration of identity categories in allied virtual spaces, this book will be of interest to sociologists, as well as scholars of popular culture, and cultural and media studies.
Making Rights a Reality? explores the way in which disability activists in the United Kingdom and Canada have transformed their aspirations into legal claims in their quest for equality. It unpacks shifting conceptualizations of the political identity of disability and the role of a rights discourse in these dynamics. In doing so, it delves into the diffusion of disability rights among grassroots organizations and the traditional disability charities. The book draws on a wealth of primary sources including court records and campaign documents and encompassing interviews with more than sixty activists and legal experts. While showing that the disability rights movement has had a significant impact on equality jurisprudence in two countries, the book also demonstrates that the act of mobilizing rights can have consequences, both intended and unintended, for social movements themselves.
From the emerging field of disability studies, Taylor Hagood offers the first book-length consideration of impairment in William Faulkner's life and writing. Blending biography, textual analysis, and theory in an experimental style, Hagood explores in both form and content the constructs of normality and their power. Hagood brings to light little-known and rarely discussed ways in which Faulkner's personal and familial background were marked by disability and discusses the ways the writer incorporates disability into his fiction. He reevaluates Faulkner's so-called ""idiots""-Benjy Compson, Ike Snopes, and others-as characters whose narratives both satisfy and shock the reader. Hagood also examines the roles that impairment and abnormality play in texts such as the stories ""The Leg"" and ""The Kingdom of God"" and the novels A Fable and Flags in the Dust. Highly original readings result, including new understandings of: the centrality of the visually impaired Pap in Sanctuary; the disability-centric social order based on interdependence in Pylon; and the disabled speech of Linda Snopes Kohl in The Mansion. Hagood argues that Faulkner's poetics are deeply invested in disability, both in promoting a disability-inclusive fictional world and in exposing and subverting the devaluation of disabled bodies and minds. Hagood draws on firsthand knowledge of his native of Ripley, Mississippi, the ancestral home of the Faulkners, to offer readers otherwise inaccessible contextual information. Moreover, by framing each section of his study within a different kind of discourse-newspaper style, biography, email, and advertisement-he uses the very structure of the book to underscore the questions of normalcy prevalent in disability studies. This rich and unconventional study offers insight into a Faulkner haunted by experiences of disablement and compelled to narrate them in his own writing.
Young, Disabled and LGBT+ brings together the work of an international team interested in exploring the intersection of sexuality, gender identity, and disability in the lives of young people and aims to further develop this area as a distinct area of study. This volume features original research and writing into lives that are often misunderstood, marginalised and under-represented in research. It is framed with artwork, poetry and writing from young disabled LGBT+ people, and centralises the voices and lives of young disabled LGBT+ people throughout. Drawing from disciplines including: sociology, psychology, disability and youth studies, and with contributions from practitioners, it examines experiences and research from a number of perspectives, such as education, personal lives and activism. Featuring work from the UK, Canada, United States, India and Australia, it is a timely and topical book which will appeal to scholars particularly interested in sexuality, gender, disability and youth studies; professionals within health, education, social work and youth work who aim to understand and support young disabled LGBT+ people; and young people themselves.
The UN Convention on the Rights of Persons with Disabilities promotes ability equality, but this is not experienced in national laws. Australia, Canada, Ireland, the UK and the US all have one thing in common: regulatory frameworks which treat workers with psychosocial disabilities less favorably than workers with either physical or sensory disabilities. Ableism at Work is a comprehensive and comparative legal, practical and theoretical analysis of workplace inequalities experienced by workers with psychosocial disabilities. Whether it be denying anti-discrimination protection to people with episodic disabilities, addictions or other psychological impairments, failing to make reasonable accommodations/adjustments for workers with psychosocial disabilities, or denying them workers' compensation or occupational health and safety protections, regulatory interventions imbed inequalities. Ableism, sanism and prejudice are expressly stated in laws, reflected in judgments, and perpetuated by workplace practices and this book enables advocates, policy makers and lawmakers to understand the wider context in which systems discriminate workers with psychosocial disabilities.
This vital addition to carceral, prison, and disability studies draws important new links between deinstitutionalization and decarceration Prison abolition and decarceration are increasingly debated, but it is often without taking into account the largest exodus of people from carceral facilities in the twentieth century: the closure of disability institutions and psychiatric hospitals. Decarcerating Disability provides a much-needed corrective, combining a genealogy of deinstitutionalization with critiques of the current prison system. Liat Ben-Moshe provides groundbreaking case studies that show how abolition is not an unattainable goal but rather a reality, and how it plays out in different arenas of incarceration-antipsychiatry, the field of intellectual disabilities, and the fight against the prison-industrial complex. Ben-Moshe discusses a range of topics, including why deinstitutionalization is often wrongly blamed for the rise in incarceration; who resists decarceration and deinstitutionalization, and the coalitions opposing such resistance; and how understanding deinstitutionalization as a form of residential integration makes visible intersections with racial desegregation. By connecting deinstitutionalization with prison abolition, Decarcerating Disability also illuminates some of the limitations of disability rights and inclusion discourses, as well as tactics such as litigation, in securing freedom. Decarcerating Disability's rich analysis of lived experience, history, and culture helps to chart a way out of a failing system of incarceration.
Examining representations of speech disorders in works of literature, this first collection of its kind founds a new multidisciplinary subfield related but not limited to the emerging fields of disability studies and medical humanities. The scope is wide-ranging both in terms of national literatures and historical periods considered, engaging with theoretical discussions in poststructuralism, disability studies, cultural studies, new historicism, gender studies, sociolinguistics, trauma studies, and medical humanities. The book's main focus is on the development of an awareness of speech pathology in the literary imaginary from the late-eighteenth century to the present, studying the novel, drama, epic poetry, lyric poetry, autobiography and autopathography, and clinical case studies and guidebooks on speech therapy. The volume addresses a growing interest, both in popular culture and the humanities, regarding the portrayal of conditions such as stuttering, aphasia and mutism, along with the status of the self in relation to those conditions. Since speech pathologies are neither illnesses nor outwardly physical disabilities, critical studies of their representation have tended to occupy a liminal position in relation to other discourses such as literary and cultural theory, and even disability studies. One of the primary aims of this collection is to address this marginalization, and to position a cultural criticism of speech pathology within literary studies.
Bioethics and Disability provides tools for understanding the concerns, fears and biases that have convinced some people with disabilities that the health care setting is a dangerous place and some bioethicists that disability activists have nothing to offer bioethics. It wrestles with the charge that bioethics as a discipline devalues the lives of persons with disabilities, arguing that reconciling the competing concerns of the disability community and the autonomy-based approach of mainstream bioethics is not only possible, but essential for a bioethics committed to facilitating good medical decision making and promoting respect for all persons, regardless of ability. Through in-depth case studies involving newborns, children and adults with disabilities, it proposes a new model for medical decision making that is both sensitive to and sensible about the fact of disability in medical cases.
This book, the first to specifically focus on disability hate speech, explains what disability hate speech is, why it is important, what laws regulate it (both online and in person) and how it is different from other forms of hate. Unfortunately, disability is often ignored or overlooked in academic, legal, political, and cultural analyses of the broader problem of hate speech. Its unique personal, ideological, economic, political and legal dimensions have not been recognized - until now. Disability hate speech is an everyday experience for many people, leaving terrible psycho-emotional scars. This book includes personal testimonies from victims discussing the personal impact of disability hate speech, explaining in detail how such hatred affects them. It also presents legal, historical, psychological, and cultural analyses, including the results of the first surveys and in-depth interviews ever conducted on this topic in some countries. This book makes a vital contribution to understanding disability hatred and prejudice, and will be of particular interest to those studying issues associated with hate speech, disability, psychology, law, and prejudice.
Why We're Not Benefit Scroungers explores the facts about the benefits system for chronically ill or disabled people. It looks at how often the system fails the people it is supposed to be helping, and how proposed changes to the system risk making this worse. It also brings together stories from people with a range of disabilities and chronic illnesses to show some of the difficulties that these people continue to face in society. The policy analysis section focuses on the benefits system as it relates to disabled and chronically ill people, looking in particular at the assessment process for Employment and Support Allowance and the forthcoming change from Disability Living Allowance to Personal Independence Payments. Data and reports from the DWP, Citizen's Advice Bureau and Joseph Rowntree Foundation amongst others are used to build up a review of the benefits system. The accumulation of evidence shows a system that is routinely failing to provide the safety net that many people expect to have ready to catch them when disability or chronic illness blocks their ability to earn an income. Failures in both the current system and in the proposed reformed system leave the community filled with fear and the government exposed to breaching human rights. The section containing individual stories presents a small selection of the challenges of living with various chronic illnesses or disabilities. With difficulties including poor education, problems accessing public places in wheelchairs, and loss of physical or mental aptitude, these stories give an insight into what disabled and chronically ill people have to overcome, and what still needs to be done, before everyone can access society and societal provisions in an equal manner.
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