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South African born-and-raised Hollywood screenwriter Helena Kriel is researching the ancient text of the Kama Sutra for a movie she’s writing. At the same time, she is travelling to India to meet with sages and find answers to the universal challenges of sex and love. While searching for love in her doomed relationships, little does she know she will find her answers in caring for her dying brother, Evan, in South Africa.
Set in the mid-1990s, South Africa is just emerging from the darkness of apartheid and bursting with vibrant chaos. The story zooms in on an intense year in the narrator’s life. It centres around the lively and eccentric South African Kriel family: Maya, the combative but inspired mother; Lexi, the sister recently returned from living in a temple in India; Ross, the younger brother diving with sharks; and Helena, the narrator, herself on a journey to understand love and death. At the heart of the story is Evan, her terminally ill 30-year-old gay brother, who has been keeping his illness a shameful secret. Conscious, sensitive, terrified and trying to hang onto sanity as his world changes, Evan becomes paralysed then finally goes blind as death draws ever closer. But it is Evan who leads the family through the fire.
In living through her brother’s fight to stay alive, the narrator finds herself at the heart of a savage story, one she would not have chosen. How could she know when she set out to India to find ancient solutions to the modern problems of our age that her brother’s approaching death would be her greatest teacher? How could she imagine that dying brings everything to life?
The Year Of Facing Fire is an astoundingly written memoir by one of South Africa’s finest writers. It traverses universal themes including love, death and sex, and finds value in the ordinary and great beauty in the uncertain.
Since the first edition of HIV and AIDS Education, Care and Counselling was published almost 20 years ago, it has become the standard handbook in Africa for thousands of HIV and AIDS practitioners. However, ongoing HIV and AIDS research requires regular revisions to the handbook for it to remain current with developments in prevention and treatment. Consequently, this new edition has been updated with input from two new specialist co-authors. This has strengthened the multicultural and multidisciplinary approach of this edition to Africa's unique challenges.
It is now forty years since the discovery of AIDS, but its origins continue to puzzle doctors, scientists and patients. Inspired by his own experiences working as a physician in a bush hospital of Zaire, Jacques Pepin looks back to the early twentieth-century events in central Africa that triggered the emergence of HIV/AIDS and traces its subsequent development into the most dramatic and destructive epidemic of modern times. He shows how the disease was first transmitted from chimpanzees to man and then how military interventions, urbanisation, prostitution and large-scale colonial medical campaigns intended to eradicate tropical diseases combined to disastrous effect to fuel the spread of the virus from its origins in Leopoldville to the rest of Africa, the Caribbean and ultimately worldwide. This is an essential perspective on HIV/AIDS and on the lessons that must be learned as the world faces another pandemic.
A practical guide for primary health care personnel in the clinical and supportive care of people with HIV/AIDS. This book is a user-friendly, practical guide for medical personnel who treat, care for, or support people with HIV/AIDS at the primary care level. This updated edition addresses many areas including TB, STDs, HIV testing, counselling, treatment, education terminal care, specific needs of women and children, mother to child transmission and risk and injury to health care personnel. Illustrations are used throughout the book to promote a caring, accepting attidue to AIDS. In addition to doctors and primary care nurses, this book is also useful for counsellors, social workers, psychologists, alternative health care professionals and therapists. It also serves as a useful reference guide in clinics and in the training of personnel.
The Radiology of AIDS is aimed at candidates for postgraduate examinations in all specialities and especially those doctors with some training in HIV disease who need to assess their knowledge of the subject. This book is particularly applicable to candidates for postgraduate examinations in radiology.
"In this original and interdisciplinary book, Chase illuminates the unequal treatment faced by the Puerto Rican women she studied and creates compassion for the hardships they faced." -Michele Tracey Berger, author of The Intersectional Approach Surviving HIV/AIDS in the Inner City explores the survival strategies of poor, HIV-positive Puerto Rican women by asking four key questions: Given their limited resources, how did they manage an illness as serious as HIV/AIDS? Did they look for alternatives to conventional medical treatment? Did the challenges they faced deprive them of self-determination, or could they help themselves and each other? What can we learn from these resourceful women? Based on her work with minority women living in Newark, New Jersey, Sabrina Marie Chase illuminates the hidden traps and land mines burdening our urban health care system. For the women she studied, alliances with doctors, nurses, and social workers could literally mean the difference between life and death. By applying the theories of sociologist Pierre Bourdieu to the day-to-day experiences of HIV-positive Latinas, Chase explains why some struggled and even died while others flourished and occasionally thrived under difficult conditions. These gripping, true-life stories reveal the strategies utilized by the chronically ill among us who depend on the health care "safety net." Through her exploration of life and death among Newark's resourceful women, Chase provides the groundwork for transforming our ailing urban health care system. SABRINA MARIE CHASE is a medical anthropologist specializing in family medicine and racial and ethnic health care disparities. She is a health care researcher at the Robert Wood Johnson Medical School. A volume in the Studies in Medical Anthropology series, edited by Mac Marshall
This book introduces a number of HIV/AIDS cases with mucocutaneous lesions. HIV/AIDS can manifest a variety of skin lesions due to immunological disorder, opportunistic infections and tumors always occur primarily with skin lesions. The cases included in this book reflect the diseases spectrum and evolution of mucocutaneous lesions at different stages before and after AIDS antiretroviral therapy (ART) as well. This book consists of nine chapters, including fungal, viral, bacterial, parasitic, neoplastic, inflammatory diseases, syphilis and ART-induced diseases, etc. More than 300 cases and 600 photos of representative and important clinical significances are selected, showing the different clinical characteristics of the same disease under different immune status. Clinical photos are combined with clear and concise medical history along with the discussion on it, by which the readers can understand why skin lesions can be used as the early diagnostic clues to HIV/AIDS infection. Moreover, every chapter summarizes the similarity and characteristics of each type of skin diseases, which outlines and explains why they are AIDS-related mucocutaneous lesions.
In this thought-provoking portrait of AIDS Healthcare Foundation, the world s largest HIV/AIDS medical care provider, award-winning journalist Patrick Range McDonald reveals the nonprofit s unlikely rise from a feisty grassroots organization during the 1980s AIDS crisis in Los Angeles to its position today as an aggressive, global leader in the ongoing fight to control HIV and AIDS. This riveting story highlights the motivations behind AHF s life-saving efforts, its battles against (and alliances with) governments and various political establishments, and its work today to provide free HIV treatment and prevention services to vulnerable, lower-income people in more than thirty countries. With unrestricted, insider access, McDonald follows AHF for a year as it clashes with the Obama administration, the state of Nevada, and the World Health Organization. He interviews AHF s key players, including firebrand president Michael Weinstein, and he travels to AHF outposts around the globe, from Miami to Uganda, Cambodia to Russia, Estonia to South Africa. Along the way, McDonald discovers that AHF is a passionate, smart, and tenacious people power organization that brings hope and change to nearly all corners of the world. Beyond its work as a highly effective global AIDS organization, the AHF story also provides a blueprint for every kind of righteous rebel who wants to make the world a better place."
When Malaysia Airlines flight MH17 was shot down by pro-Russian rebels in July 2014, the world wondered if a cure for HIV had fallen from the sky and disappeared among the burning debris. Seated in the plane's business-class cabin was Joseph Lange, better known as Joep, a shrewd Dutch doctor who had revolutionized the world of HIV and AIDS and was working on a cure. Dr. Lange graduated from medical school in 1981, right as a new plague swept across the globe. His story became intertwined with the story of HIV. At once a physician, scientist, AIDS activist, and medical diplomat, Lange studied ways to battle HIV and prevent its spread from mother to child. Fighting the injustices of poverty, Lange advocated for better access to health care for the poor and the vulnerable. He championed the drug cocktail that finally helped rein in the disease and was a vocal proponent of prophylactic treatment for those most at risk of contracting HIV. The Impatient Dr. Lange is the story of one man's struggle against a global pandemic-and the tragic attack that may have slowed down the search for a cure. Seema Yasmin charts the course of the HIV epidemic and Dr. Lange's career as a young doctor who blazed his own path and dedicated his life to HIV. Yasmin draws on written records, medical journals, recorded discussions, expert testimony, and extensive interviews with Lange's family, friends, and colleagues around the globe-including the people he spoke to in the days before he died. She faithfully reconstructs key scenes from Lange's life and the history of the AIDS epidemic, revealing how Lange became a global leader in the fight against AIDS. The first book about Lange and his contributions to the fight against HIV, The Impatient Dr. Lange is a powerful tribute to one of the greatest scientists, activists, humanitarians, and social entrepreneurs in the world of HIV/AIDS.
Tremendous strides have been made in the prevention and treatment of HIV since the disease first appeared in the 1980s. But because many of the people who studied and battled the virus in those early days are now gone, firsthand accounts are at risk of being lost. In HIV Pioneers, Wendee M. Wechsberg collects 29 "first stories" from the outset of the AIDS epidemic. These moving personal narratives and critical historical essays not only shed light on the experiences of global health pioneers, prominent scientists, and HIV survivors, but also preserve valuable lessons for managing the risk and impact of future epidemics. With unprecedented access to many key actors in the fight against AIDS and HIV, Wechsberg brings to life the harrowing reality of those early days of the epidemic. The book captures the experiences of those still working diligently and innovatively in the field, elevating the voices of doctors, scientists, and government bureaucrats alongside those of survivors and their loved ones. Focusing on the impact that the epidemic had on careers, pieces also show how governments responded to HIV, how research agendas were developed, and how AIDS service agencies and case management evolved. Illuminating the multiple facets of the HIV epidemic, both in the United States and across the globe, HIV Pioneers is a touching and inspirational look into the ongoing fight against HIV. Contributors: Quarraisha Abdool Karim, Salim S. Abdool Karim, Lynda Arnold, Anne Jeanene Bengoa, Robert E. Booth, Barry S. Brown, Thomas Coates, Francine Cournos, James W. Curran, Don C. Des Jarlais, Jeffrey D. Fisher, William A. Fisher, Samuel R. Friedman, Robert C. Gallo, Mary Guinan, Gibbie Harris, Warren W. Hewitt Jr., Susan M. Kegeles, Rayford Kytle, Bishop Stacey S. Latimer, Robert Love, Duane C. McBride, Clyde B. McCoy, Carmen Morris, Willo Pequegnat, Mary Jane Rotheram-Borus, Jeffrey Samet, David Serwadda, Lorraine Sherr, James L. Sorensen, Jack B. Stein, Charles van der Horst, Wendee M. Wechsberg, Wayne Wiebel, William A. Zule
Based on a conference on Oxidative Stress and Redox Regulation, held at the Pasteur Institute, Paris, this work examines fundamental, chemical, biological and medical studies of free radicals on different targets and the consequences of their reactivity. It covers the chemistry and biochemistry of free radicals, free radicals as second messengers that group the activation of transcription factors and enzymes, the importance of the antioxidant system in cell metabolism regulation, and the role of free radicals and antioxidants in disease management. The editors of this work are three of the most respected pioneers in the field. Dr. Montagnier is credited as the discoverer of HIV.
Get a detailed overview of the social services provided for HIV-infected midlife and older adults, and find out where social work practice with this growing population is headed! As more potent medications are being developed to treat HIV, people who have contracted the virus are living longer lives than previously expected. Survival means new side effects and increasingly complex issues, now compounded by the diseases of aging. All this presents unprecedented challenges to social service and benefit systems. Midlife and Older Adults and HIV: Implications for Social Service Research, Practice and Policy introduces policymakers and policy analysts, practitioners in the helping professions, and the public to available social services for aging adults who are living with HIV/AIDS. It also addresses midlife and older adults at risk of HIV infection as well as aging persons whose lives are affected by relatives and friends living with HIV. Midlife and Older Adults and HIV provides a comprehensive examination of this emerging field of practice. Specific chapters examine prevention, family care, vulnerability, inclusion, and the disease process itself. It lays out the broad terrain of future social work practice with HIV-infected elders and elders affected by HIV. The book concludes with reflections on survivorship during the past two decades from six older community leaders living with HIV/AIDS. It also provides current research findings, innovative conceptual models, an invaluable compendium of resource information from the National Association of HIV Over Fifty, and program ideas to address the HIV epidemic within the aging population. The issues addressed in Midlife and Older Adults and HIV include: HIV prevention initiatives coordination and integration of local service networks the health, social, and financial risks facing women with HIV the health consequences of HIV/AIDS and its interactions with normal aging the use of behavioral reinforcement methods as interventions perceptions of vulnerability to HIV among older African-American women and the role of intimate partners and much more! Midlife and Older Adults and HIV is a comprehensive resource on social services for aging adults who are living with HIV/AIDS. It serves as a record of what is known and what is presently being learned about practice in this constantly evolving field. The book is a call to action for social workers and other human service professionals to anticipate and plan for the emerging needs of persons with HIV/AIDS who are rapidly growing older. The array of topics covered in this volume also makes it ideal as a supplemental textbook in courses on HIV and aging.
The feminization of HIV epidemics has been steadily increasing worldwide. In sub-Saharan Africa, 75 per cent of young people infected are women and girls. Gender disparities in education contribute to social conditions that facilitate the spread of HIV. This book will help government policymakers and NGO practitioners improve their understanding of how schools can practice gender equality and provide HIV and AIDS education.Researchers, NGOs, and donors contribute case studies and research from around the world. They show the extreme importance of educating girls who are less likely than boys to attend school and therefore are more vulnerable to HIV. Also addressed are the need to educate boys against violence towards girls; teachers against sexual abuse of girls; and ministers of education about implementing, monitoring, and evaluating equal gender practices in education.Topical and informative, this fascinating book includes examples from South Africa and South-East Asia and seeks to explain and illustrate the key arguments and debates in this area."
Make sense out of confusing HIV/AIDS terminology!Finally, here is a reference work that contains clear and useful definitions of words, phrases, and medical terms associated with HIV/AIDS! The Encyclopedic Dictionary of AIDS-Related Terminology is an easy-to-understand guide to all of the mainstream jargon surrounding this epidemic. This user-friendly volume brings you a number of essential features, such as: popular and scientific names of conditions and medicines listings of addresses and contact information for organizations and government agencies that are concerned with HIV/AIDS definitions of historical terms, abbreviations, and acronyms related to HIV/AIDS details of corporate and organizational involvement with HIV/AIDS research, prevention, and intervention The Encyclopedic Dictionary of AIDS-Related Terminology also includes entries that describe and relate to legal, social, psychological, and religious issues, not just medical terms, to give readers a complete source that will meet all of their needs. With this single resource, you will be able to easily and thoroughly understand the sometimes complex jargon associated with HIV/AIDS. For librarians, AIDS service organizations, people living with AIDS, and the general public, the Encyclopedic Dictionary of AIDS-Related Terminology is a comprehensive guide to conditions and medical terms associated with HIV/AIDS. Dates, histories, addresses, telephone numbers, and Web site addresses are included with many entries.Including words specific to the epidemic as well as related psychosocial phrases, this essential volume offers you definitions of HIV/AIDS medications and listings of organizations and government agencies that are concerned with the disease.
Activism and Marginalization in the AIDS Crisis shows readers how the advent of HIV-disease has brought into question the utility of certain forms of "activism" as they relate to understanding and fighting the social impacts of disease. This informative and powerful book is centrally concerned about the ways in which institutionally governed social constructions of HIV/AIDS affect policy and public images of the disease more so than activist efforts. It asserts that an accounting of the power institutional structures have over the dominant social constructions of HIV disease is fundamental to adequate forms of present and future AIDS activism. Chapters in Activism and Marginalization in the AIDS Crisis demonstrate how, despite what is thought of as the "successful activism" of the past decade, the claims of the HIV-positive are still being ignored, still being marginalized, and still being administratively "handled" and exploited even as the plight of those who find themselves HIV-positive worsens. Although chapters reject the assertion that activism has been a highly effective remedy to HIV-positive voicelessness, authors do not deny that activists have been vocal, but that they continue to be ignored despite their vocality.Contributors in Activism and Marginalization in the AIDS Crisis offer numerous examples of institutional control and demonstrate that institutional structures, and not activists, are controlling the public meaning of HIV-related issues. Readers learn how messages about HIV/AIDS are produced, negotiated, modified, and sustained through institutional mechanisms that serve mostly institutional interests rather than those of the HIV-positive. In gaining an understanding of these issues, readers will begin to learn how to modify and strengthen activist efforts with valuable insight on: the lack of HIV-positive voices in mainstream news portrayals of HIV/AIDS research on constructions of HIV-disease at the state government level social constructions and how they affect HIV/AIDS policy the political construction of AIDS and interest-based struggles the emergent "bio-politics" of HIV and homosexuality in the U.S. how institutional power works to govern public understanding of HIV diseaseInstitutional structures are defined in this book as groups engaged in and defined by the production of various "truths" which sustain them. Institutional power may be defined as the capacity to regulate, constrain, and disseminate versions of "truth." Activism and Marginalization in the AIDS Crisis reveals how HIV activist groups have been outmaneuvered when it comes to the production and dissemination of various "truths" about HIV/AIDS by institutional structures more deeply steeped in social legitimacy and which have a superior capacity for message dissemination.HIV/AIDS activists, HIV-positive persons and those with AIDS, HIV/AIDS educators, public and institutional policymakers, health professionals, and the general public will find this book essential to understanding the social constructions of HIV/AIDS, how these affect HIV/AIDS-related policy and public opinion, and how to begin to cipher through the plethora of information to find and promote the "truth."
"I am an AIDS doctor. When I began that work in 1992, we knew what caused AIDS, how it spread, and how to avoid getting it, but we didn't know how to treat it or how to prevent our patients' seemingly inevitable progression toward death. The stigma that surrounded AIDS patients from the very beginning of the epidemic in the early 1980s continued to be harsh and isolating. People looked askance at me: What was it like to work in that kind of environment with those kinds of people? My patients are 'those kinds of people.' They are an array and a combination of brave, depraved, strong, entitled, admirable, self-centered, amazing, strange, funny, daring, gifted, exasperating, wonderful, and sad. And more. At my clinic most of the patients are indigent and few have had an education beyond high school, if that. Many are gay men and many of the patients use or have used drugs. They all have HIV, and in the early days far too many of them died. Every day they brought us the stories of their lives. We listened to them and we took care of them as best we could."-from the Introduction In 1992, Dr. Susan C. Ball began her medical career taking care of patients with HIV in the Center for Special Studies, a designated AIDS care center at a large academic medical center in New York City. Her unsentimental but moving memoir of her experiences bridges two distinct periods in the history of the epidemic: the terrifying early years in which a diagnosis was a death sentence and ignorance too often eclipsed compassion, and the introduction of antiviral therapies that transformed AIDS into a chronic, though potentially manageable, disease. Voices in the Band also provides a new perspective on how we understand disease and its treatment within the context of teamwork among medical personnel, government agencies and other sources of support, and patients. Deftly bringing back both the fear and confusion that surrounded the disease in the early 1990s and the guarded hope that emerged at the end of the decade, Dr. Ball effectively portrays the grief and isolation felt by both the patients and those who cared for them using a sharp eye for detail and sensitivity to each patient's story. She also recounts the friendships, humor, and camaraderie that she and her colleagues shared working together to provide the best care possible, despite repeated frustrations and setbacks. As Dr. Ball and the team at CSS struggled to care for an underserved population even after game-changing medication was available, it became clear to them that medicine alone could not ensure a transition from illness to health when patients were suffering from terrible circumstances as well as a terrible disease.
This much-needed book presents an introduction and overview of multicultural AIDS issues in social work practice. In a culturally diverse nation, it is essential that professionals look at AIDS within a cultural context in order to find the most effective treatment and prevention strategies for everyone. Emphasizing this need for a culturally sensitive approach, Multicultural Human Services for AIDS Treatment and Prevention increases social workers'often limited knowledge and experience with various social and ethnic groups. It provides specific suggestions and recommendations for program development and acts as a foundation upon which to build new strategies for policy, research, and practice. Multicultural Human Services for AIDS Treatment and Prevention emphasizes the importance of encouraging and sharing research that addresses AIDS and minority populations and assessing prevention, education, and behavioral change strategies from culturally specific and relevant perspectives. It includes chapters focusing on African Americans, Native American Indians, Hawaiians, Puerto Ricans, and Mexican prostitutes--groups that often suffer disproportionately from poverty and its myriad effects. Some topics discussed in the book are: helping clients reduce cultural dissonance how to enhance behavior change child welfare and permanency planning empowerment of clients and health care models knowledge, attitudes, and behaviors regarding HIV/AIDS cultural contradictions and ambivalence in response to AIDSMulticultural Human Services for AIDS Treatment and Prevention is an extremely useful and informative book for all professionals in social work and human services who want to be better prepared to help all groups of people. The book is also an ideal text for upper-level social work students studying topics such as multicultural issues in social work practice, AIDS in a cultural context, and health policy and health care systems.
Despite educational efforts, the majority of Americans are still under the misconception that they are not at risk from HIV/AIDS infection. In addition, the federal government only spends 2% of the total designated federal AIDS funding toward prevention. Thus, information in respect to AIDS and health communication in any comprehensive nature is almost nonexistent.; This book aims to rectify the situation by presenting detailed analysis and actions necessary to confront the AIDS pandemic on every level of the communication realm. Contributors are experienced researchers, educators, government officials, and physicians. They examine the issue from a number of standpoints, including: communication, adolescent medicine, public administration, psychology, journalism, audiology, speech and language pathology, neurological surgery, preventive medicine and public health.
This book provides an overview of background information on the epidemiology, biology, and pathophysiology of HIV infection. It presents the spectrum of HIV disease from acute infection to specific syndrome. The book reviews the management of specific opportunistic infections.
With HIV becoming the leading cause of infectious-disease mortality in Mainland China, this book focuses on tackling HIV/AIDS in the face of rapid political and economic change in China. Featuring contributions by over a dozen leading figures in the field, this book is the go-to text for any student or reader interested in how national and international organizations' are attempting to control this epidemic. The book includes chapters on the epidemiology, treatment, and prevention of HIV, as well as several chapters that discuss in detail specific provincial- and national-level programs to control and treat HIV. It chronicles the Chinese government's amazing about-face, as it replaced underfunded, non-evidence based policy decisions with successful, science-based approaches to disease control and prevention, including the adoption of once controversial needle-exchange programs and the establishment of a national HIV/AIDS data registry. It measures the success of national policy decisions, the implementation of treatment policies, and discusses the difficulty of accessing high-risk communities, including people who inject drugs, sex workers, and men who have sex with men - groups not easy to reach, study, engage in prevention programs, or treatment, for fear of stigmatization and loss of social status. Further, it documents the spread of HIV to other provinces, and the tragedy that befell repeat plasma donors in Henan and other poor provinces, where reused or improperly sterilized lab equipment caused some villages to have epidemic-level incidence rates. This book represents a positive contribution to the field of AIDS research, making vital, new information available to an interested readership.
With the exception of Africa, the highest percentage of HIV infections are found in high-risk groups such as drugs users, prostitutes, the transgender community, gay men, street children or prisoners. They encounter more stigmatisation and discrimination than other groups, which makes it harder for aid to reach them. Writer Colet van der Ven and photographer Adriaan Backer travelled around the world to give these people a voice: women in patriarchal Tadzhikistan, victims of political violence in Kenya, black homosexuals in the deeply religious southern states of America, transgenders in India, (ex-)prisoners in South Africa and drug users in Myanmar. They also interviewed a representative of the first generation of AIDS patients in the Netherlands and a female refugee in the Ukraine.
This book represents a body of work performed by students from a diverse set of disciplines and a variety of universities in the United States and Santiago, Chile. Each project was developed by the students to "break the cycle of social, economic and environmental health disparities". This book contains the projects from the eighth annual Break the Cycle' program. "Break the Cycle" projects are designed to raise awareness among the students of the reality of environmental health disparities and its impact on the world around them. Although students may feel daunted by the magnitude of the challenge, they need to know that even the relatively small project they develop can make a big difference and becomes part of an inexorable process towards making the world a better place for all of its citizens. The dictum that "It is not incumbent upon you to finish the task, yet, you are not free to desist from it" empowers the students to take on a challenge for a lifetime and beyond. We believe that the lessons the students learned from their own projects, from working with the other students and from appreciating the difference that each little effort can make, goes significantly towards cultivating our future leaders; these are the people who will carry on the work and make the world a better place in their time.
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