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An indispensable guide offering insight and support to carers of people with depression Looking after a person with depression can often leave carers emotionally and physically exhausted. This short, straightforward and easily understandable guide offers valuable advice on how carers can: - better understand the nature of depression and how it affects both patient and carer - have a clearer understanding of the treatment options for the patient, including medication and therapy - lessen the impact of the illness on the carer's life - find the help and support they need - maintain their own well-being whilst supporting the patient through to recovery and beyond Although aimed at the carer, this is a guide that is equally valuable to the patient themselves and to their wider family and friends in promoting a better understanding of the experience of depression.
According to the Alzheimer's Association, one in ten persons over sixty-five and nearly half of those over eighty-five have Alzheimer's disease. Today, 4 million Americans have Alzheimer's disease. In a national survey, 19 million Americans said they have a family member with the ailment, and 37 million said they knew someone who had it. But when Rosette Teitel found herself in the role of caregiver to her ailing husband, she could find no books that answered her practical needs: How do you give a 170-pound man a shower? How do you pick him up when he falls? What should you anticipate as the disease progresses? What support networks are available? When is it time to consider a nursing home and how do you find one?
While many Alzheimer's disease books focus on the disease and the patient, Teitel draws on her own experience -- as well as that of a clinical psychologist, a coordinator of an Alzheimer's program at a community center, members of the Alzheimer's Foundation, a research psychologist, an elder-law attorney, and a neurologist -- to tackle subjects rarely dealt with in other self-help books. Teitel covers topics such as managing the expenses of long-term care through Medicaid, estate planning, and preparing for the patient's death and the loss of someone whose daily survival has been at the center of one's existence. The chapters deal with background information on diagnosis, treatment, and the progression of the disease; the physical and emotional changes and resources involved with the day-to-day caregiving; support networks; nursing homes; finances; death of the patient; grief, mourning, and life after the patient's death; and interviews with children caring for parents withAlzheimer's disease. In addition, Teitel provides a helpful list of frequently asked questions, scheduling and memory aids, and websites where readers can find resources.
While supporting and caring for people as they get older you will be on a rollercoaster ride of emotional ups and downs . The experience of caring is unique to each individual and there are many physical and practical demands, but it is the way in which the role challenges your emotions which can be draining and sometimes even damaging. Using the authors own experience, as well as extensive interviews with other carers, this book is intended to offer support to fellow carers of an older person. It shows you that you are not alone in the many ways that you are challenged and there is help available. It will help you to recognise the positives that caring can bring to your life and to develop ways of dealing with the challenges. Directed at those caring for older people going through the normal process of ageing, rather than those caring for people with a long term illness or disability, this book identifies the whole process of caring from the entry phase of the role to moving on after your time as a carer has finished. Each stage has different demands which are highlighted through case examples and practical guidance for coping strategies.
Rebalancing the Roles in Caregiving So All Involved Are Supported
"When you care for someone who is dealing with the complexities of aging, illness, or disability, you share intense emotions and form deep bonds. You each have the opportunity to recognize what is most deeply human and most deeply Divine in the other. This sense of reciprocal sharing between the caregiver, care receiver, and with others around you is the essence of the dance in caresharing." from the Prelude
The word caregiver typically suggests someone doing all the giving for a frail, physically or mentally challenged, or aging person who is doing all the receiving. Marty Richards proposes a rebalanced approach of caresharing. From this perspective, the cared for and the carer share a deep sense of connection. Each has strengths and resources. Each can teach the other. Each can share in grief, hope, love and wisdom.
Richards shows you how to move from independent caregiving to interdependent caregiving by engaging the spiritual and emotional aspects of caring for a loved one. Whether you are a daughter or son, a husband or wife, a sibling, long-term partner or good friend, Caresharing offers a multilayered, reciprocal process that will help you keep your spirit and your loved one's spirit alive in challenging times.Sharing Wisdom: What the Frail Teach the WellSharing Roles: Reinventing Family Roles in Sharing CareSharing Soul to Soul: A Special Relationship with People with DementiaSharing Grief: Dealing with the Little Losses and the Big OnesSharing Forgiveness: A Key Spiritual JourneySharing Hope and Heart: An Active Process One Step at a Time"
Working Daughter is a revelatory look at who's caring for our aging population and how these unpaid family caregivers are trying to manage caring for their parents, raising their children, and pursuing their careers. It tells the story of one woman who was enjoying a fast-paced career in marketing and raising two children, until both of her parents were diagnosed with terminal illnesses on the same day. In the challenges she faced and the choices she made, readers will learn how they can navigate their own caregiving experience and/or prepare for when they are inevitably called on to care for their parents. Working Daughter sparks the conversation we so desperately need to have about women and the workplace. With 10,000 people turning 65 every day and a shortage of caregivers predicted in the next few years, it's time we talk about how family caregivers and their employers will face the impact of a rapidly aging society. This book fills the gap in the literature on women and work; there are volumes of books about managing career and children, but little advice on how to balance career and parents. Working Daughter provides a blueprint for women and a call to action for business leaders and policy makers. This is book is for women who want straight talk and real advice about the challenges of eldercare, the choices they will need to make, the aspects of caregiving they can control, and that which they cannot. And finally, Working Daughter shows family caregivers how they can achieve, the underreported but well-documented upside to caring for an aging parent, the caregiver's gain.
Research-based advice for people who care for someone with dementia
Nearly half of U.S. citizens over the age of 85 are suffering from some kind of dementia and require care. "Loving Someone Who Has Dementia" is a new kind of caregiving book. It's not about the usual techniques, but about how to manage on-going stress and grief. The book is for caregivers, family members, friends, neighbors as well as educators and professionals--anyone touched by the epidemic of dementia. Dr. Boss helps caregivers find hope in "ambiguous loss"--having a loved one both here and not here, physically present but psychologically absent.Outlines seven guidelines to stay resilient while caring for someone who has dementia Discusses the meaning of relationships with individuals who are cognitively impaired and no longer as they used to be Offers approaches to understand and cope with the emotional strain of care-giving
Boss's book builds on research and clinical experience, yet the material is presented as a conversation. She shows you a way to embrace rather than resist the ambiguity in your relationship with someone who has dementia.
Winner, 2016 Outstanding Publication in the Sociology of Disability, American Sociological Association, Section Disability and Society Recent years have seen an explosion in the number of children diagnosed with "invisible disabilities" such as ADHD, mood and conduct disorders, and high-functioning autism spectrum disorders. Whether they are viewed as biological problems in brain wiring or as results of the increasing medicalization of childhood, the burden of dealing with the day-to-day trials and complex medical and educational decisions falls almost entirely on mothers. Yet few ask how these mothers make sense of their children's troubles, and to what extent they feel responsibility or blame. Raising Generation Rx offers a groundbreaking study that situates mothers' experiences within an age of neuroscientific breakthrough, a high-stakes knowledge-based economy, cutbacks in public services and decent jobs, and increased global competition and racialized class and gender inequality. Through in-depth interviews, observations of parents' meetings, and analyses of popular advice, Linda Blum examines the experiences of diverse mothers coping with the challenges of their children's "invisible disabilities" in the face of daunting social, economic, and political realities. She reveals how mothers in widely varied households learn to advocate for their children in the dense bureaucracies of the educational and medical systems; wrestle with anguishing decisions about the use of psychoactive medications; and live with the inescapable blame and stigma in their communities.
Life expectancy is going up. Our parents are increasingly likely to be living into their eighties and nineties. Many find themselves in the position of caring for their parents when they are already retired themselves, or not in good health, or still have children to support financially. What can we do for the best in these situations? Do you feel your parents are a burden? Do they feel that? How do we cope with the huge costs of geriatric care? How do we manage this conflicting tangle of interests? This is a practical book that looks at the range of alternatives and provides realistic solutions. It also recognizes the negative and ambivalent feelings that plague families on all sides. Extreme old age is not easy. We need to help our parents through the difficulties they inevitably face during their final years, and balance those needs with equally pressing ones elsewhere. Dan and Lavinia Cohn-Sherbok, drawing on their own experiences, here provide a succinct overview of the problems and answers for all with elderly parents.
Carers are particularly vulnerable to feeling stressed, worried and worn down by the vast demands that often come with caregiving, be they physical, psychological or emotional. Mindfulness can be enormously beneficial to carers, whether professional or voluntary, as a means of developing greater inner stability, resilience and gaining more control over their thoughts, feelings and emotions. Mindfulness is an evidence-based approach that is proven to help protect against stress, anxiety, depression and burnout. Dr Cheryl Rezek provides an accessible introduction to mindfulness, and explains how simple mindfulness practices and psychological concepts can be used to manage the day-to-day demands of caring effectively, helping caregivers to gain a greater sense of control and maintain a more positive and balanced outlook. The book includes easy-to-use and enjoyable mindfulness exercises, short enough to fit into a busy day, as well as accompanying audio tracks to support and guide the reader through these exercises. An essential read for all those involved in caring for people with acute or long-term health and mental health conditions, disabilities and other support needs, including relatives and other informal carers, adoptive parents and foster carers, as well as professional medical, health and social care staff.
Experienced family doctor Ray Strand writes his patients prescriptions every week, but he also believes that prescribing drugs should be a last resort in most medical cases-not a first choice. In Death by Prescription he provides simple guidelines to help readers protect themselves and their families from suffering adverse reactions to prescription medication.
Navigating Life with Chronic Pain provides accessible, comprehensive, and up-to-date information about the challenges patients, family, and caregivers face when confronted by chronic pain. No two pain experiences are the same, so your chronic pain depends on where you have pain, how long you have experienced pain, and how the pain symptoms developed. Everyone needs a customized approach because pain symptoms, other medical conditions, past pain experiences, beliefs about pain, environment, ability to cope with the pain, and financial and social support (like family, friends, and caregivers) are different for every person. This book aims to provide clear and reliable information about chronic pain, including "what" (definition), "how" (pathophysiology), and "why" (etiology). The authors expertly guide the reader through current approaches to diagnoses, including a review of diagnostic tests, as well as a comprehensive, integrated approach to chronic pain treatment. They demystify the pain evaluation and explain why pain professionals might ask you for detailed and seemingly personal information. Through the use of patient stories, you get real-world experiences and advice on navigating the day-to-day challenges of chronic pain. You will learn how to take control of your chronic pain using a variety of tools, like behavioral, exercise and nutritional approaches, medications, alternative treatments (yoga and tai chi), and injections or surgery.
This indispensable guide aims to be a one-stop-shop for the huge percentage of the population who, now or later, find themselves in a caring role, whether that involves shopping for a housebound neighbour, or giving up work to care full-time for a disabled child or confused parent. This book will also help carers care for themselves. It looks at the difficult feelings that go hand in hand with caring, including how relationships are affected. There's guidance on what to do when a carer stops coping, and how to prepare emotionally and practically for the time when caring comes to an end.
Parental support is a well-accepted determinate of children's physical activities. Effective health education strategies may also include facilitating parental involvement in community and school advocacy related to their perceived need for changes. In this book, the authors present current research in the study of health education using parental and educators' perspectives, current practices and needs assessment. Topics discussed in this compilation include moving beyond the hierarchical knowledge/power nexus in anti-FGC campaigns in Africa; consensus, strategies, and potential health promoting schools; community as a setting for future-oriented health promotion in Austria; parental attitudes and perceptions related to their children's physical activity and eating patterns; influence on academic performance on perception and health habits against noise by Spanish secondary-school students; and the importance of parents and teachers as stakeholders in school-based healthy eating programs.
With a foreword by Judy Woodruff, The Unexpected Journey of Caring is a practical guide to finding personal meaning in the 21st century care experience. Personal transformation is usually an experience we actively seek out-not one that hunts us down. Becoming a caregiver is one transformation that comes at us, requiring us to rethink everything we once knew. Everything changes-responsibilities, beliefs, hopes, expectations, and relationships. Caregiving is not just a role reserved for "saints"-eventually, everyone is drafted into the caregiver role. It's not a role people medically train for; it's a new type of relationship initiated by a loved one's need for care. And it's a role that cannot be quarantined to home because it infuses all aspects of our lives. Caregivers today find themselves in need of a crash course in new and unfamiliar skills. They must not only care for a loved one, but also access hidden community resources, collaborate with medical professionals, craft new narratives consistent with the changing nature of their care role, coordinate care with family, seek information and peer support using a variety of digital platforms, and negotiate social support-all while attempting to manage conflicts between work, life, and relationship roles. The moments that mark us in the transition from loved one to caregiver matter because if we don't make sense of how we are being transformed, we risk undervaluing our care experiences, denying our evolving beliefs, becoming trapped by other's misunderstandings, and feeling underappreciated, burned out, and overwhelmed. Informed by original caregiver research and proven advocacy strategies, this book speaks to caregiving as it unfolds, in all of its confusion, chaos, and messiness. Readers won't find well-intentioned cliches or care stereotypes in this book. There are no promises to help caregivers return to a life they knew before caregiving. No, this book greets caregivers where they are in their journey-new or chronic-not where others expect (or want) them to be.
'The cold reality of my gender was dawning on me. It was motherhood that forced me to understand the timeless horror of our position. The reason women had not written novels or commanded armies or banked or doctored or explored or painted at the same rate as men. The cause was not, as I had been led to believe, that women had been prevented from working. Quite the opposite: We had been doing all of the work, around the clock, for centuries.'
After her first book was published to acclaim, journalist Megan K. Stack got pregnant and quit her job to write. She pictured herself pen in hand while the baby napped, but instead found herself traumatised by a difficult birth and shell-shocked by the start of motherhood.
Living abroad provided her with access to affordable domestic labour, and, sure enough, hiring a nanny gave her back the ability to work. At first, Megan thought she had little in common with the women she hired. They were important to her because they made her free. She wanted them to be happy, but she didn't want to know the details of their lives. That didn't work for long.
When Poonam, an Indian nanny who had been absorbed into the family, disappeared one night with no explanation, Megan was forced to confront the truth: these women were not replaceable, and her life had become inextricably intertwined with theirs. She set off on a journey to find out where they really come from and to understand the global and personal implications of wages paid, services received, and emotional boundaries drawn in the home. As she writes herself: 'Somebody should investigate. Somebody should write about all of this. But this is my life. If I investigate, I must stand for examination. If I interrogate, I'll be the one who has to answer.'
Working with older people in care can be challenging and frustrating, especially when they behave in ways that seem irrational, aggressive, or unreasonably repetitive, and nothing you can do seems to help. The authors of this useful and practical book explain how to understand the difficult and annoying ways in which older people in care can behave, (especially people with dementia), how to stay calm and kind, and how to solve the problems they can create. With many examples of everyday challenges and how to deal with them, this book has the potential to change your working life.
Soul-searing, life-testing situations have what some call "fall-out blessings." The book is about understanding some of the deeper lessons we are exposed to through caring for individuals with Alzheimer's and other types of dementia. We all want a cure. But in the meantime, while this illness is still with us, how can we create a quality of life for each person in each stage of the disease? How can we look deeper into situations that, at first glance, look hopeless and destructive in order to find opportunities for insight, inspiration, and great understanding of ourselves and those we love? How can we allow the full measure of the experience to unfold and be felt with as much of ourselves as we can bring to bear? This book will help people caring for those going through the difficult dementia journey find a way, through the tumultuous waves, to remain awake and open to the blessing of a journey that opens the heart, nurtures compassion, and ultimately enables each of us to be better human beings. It is also for those brave individuals living with memory loss illnesses, so that they be supported and allowed to live their experience fully in their own unique way, to express themselves, to love and be loved, and to be sheltered from harm-that with each stage of the progression, those around the person with dementia find ways to emphasize the loved one's remaining strengths rather than spotlight their weaknesses. A person with dementia has a whole and well spirit and, in the broadest sense, their brain is a vehicle of self-expression; it does not define their essence. Finally, this book addresses head on the final stage of the disease, when the brain has exhausted all its compensatory ability and the individual is no longer able to take part in regular day-to-day life. At this advanced stage of the disease process, people with dementia are in a deep, internal state that caregivers generally cannot access and share. It can be a very disheartening time. This internal state separates the person with dementia from those around them; however, rather than thinking of it as a prison wall separating the person with dementia from the caregiver, it may be more helpful to think of the person having retreated into a cloistered existence for a while, affording them the time needed by the soul to attend to deeper aspect of the self on a spiritual level. This phase also allows those around the person to honor the vessel, or body, that has housed the loved in in this life and prepare to let them go. When ready the individual will know the time to leave, and if allowed, will let go. Coming from a rich professional background in caring, Megan Carnarius clearly outlines the different stages of dementia and highlights many practical aspects of dementia care, suggesting accessible tools for family and professionals alike. She also addresses the more subtle, spiritual dimensions of this illness with much compassion and understanding, offering new insights into areas that have not been explored in other books on the disease.
Medical mistakes occur with alarming frequency in this country.
Nightly newscasts and daily newspapers tell of botched surgeries,
mistaken patient identities, careless overdoses, and neglected
diagnoses. You may have dismissed these stories as unfortunate
mistakes, misunderstandings, or just isolated incidents with the
occasional bad doctor.
In 2004 Stephanie Nimmo was a career-focused, suburban mother of three, happily married to the love of her life, Andy. In December that year their fourth child was born and life as Steph knew it changed dramatically. From having to give up a successful career to care for her fragile, life-limited daughter, to learning how to cope with the challenges of her sons' autism diagnoses and the cruel blow of Andy's terminal cancer, Steph learned very early on that it's not the cards you are dealt in life but how you play them. Far from being a misery memoir, Was This In The Plan?, is a frank, open and no-holds-barred account of how a family was determined not just to survive but to thrive when the odds were against them. It will make you question your own attitude to life and how you choose to respond when unexpected events throw you off course. From a family of six to four in just over a year, losing her husband to cancer and then 14 months later, her 12-year-old daughter Daisy, following life-long illness, Stephanie writes with such powerful, raw honesty that it is impossible to not be moved and inspired by her story. Resilience is a hot topic right now and Steph is the epitome of inner strength. A regular in the press opening up the conversation about death and grief.
Home parenteral nutrition (HPN) is the intravenous administration of nutrients carried out in the patient's home. This book analyses current practices in HPN, with a view to inform best practice, covering epidemiology of HPN in regions including the UK and Europe, USA and Australia, its role in the treatment of clinical conditions including gastrointestinal disorders and cancer, ethical and legal aspects and patient quality of life.
'This is a wonderful, rather special book: funny, warm and loving but also thought-provoking and deeply moving. Absolutely unforgettable - ironically.' ADAM KAY, Sunday Times bestselling author of This Is Going To Hurt Inadvertent cross-dressing Attempted murder Jail break A waltz at a funeral A hernia the size of Guernsey Heartbreaking and darkly comic, these are the moments that litter the messy road from cared-for to carer, a journey that Robyn Hollingworth finds herself on when she's only twenty-five years old. Leaving London to return home to rural South Wales, Robyn finds that it's her old life - same teddy bears resting on her pillow, their bodies tucked under the duvet; same view of the garages behind which she'd had her first cigarette and first kiss - but so much has changed. Her dad, the proud, charmingly intelligent, self-made man who made people laugh, is in the grip of early onset Alzheimer's. His brilliant mind, which saw him building power stations and literally bringing light into the lives of others, has succumbed to darkness. As Robyn settles back in the rhythms of life in the rain-soaked vast Welsh valleys, she keeps a diary charting her journey as the dad she knew disappears before her eyes. Lyrical, poignant and with flashes of brilliant humour, My Mad Dad explores how in helping others we can heal ourselves. 'At some point the cared for become the carers...this isn't a shame and it isn't a tragedy and it isn't a chore. It is an honour. To be able to return the gift of love that someone bestows upon you is a gift in itself. This is a story of caring...' 'This is a wonderful, brilliant book that also made me laugh. Robyn writes so honestly and normally. I fell in love with her mum and "mad" dad.' VICTORIA DERBYSHIRE
When Julie Wiltshire's husband, David, was diagnosed with cancer twice, he faced a series of treatments made all the more difficult by multiple complications. In A Carer's Chaos, Julie records the details of David's long journey of cancer treatment, but also offers a unique perspective into life as a carer to a loved one, exploring the love, hate, anger, loneliness and fear experienced on a daily basis by a carer. The book explores how a person's life can be turned upside down when their partner's life is threatened, and how the chaos a carer experiences can be frightening and exhausting as they attempt to swim through a sea of complications. Written with the intention of highlighting the carer's experience, Julie offers readers the chance to glimpse into the emotions experienced by a carer as they try to maintain their own individuality whilst caring for a loved one. She demonstrates through her own experience how often a carer is overlooked and experiences isolation as much of the attention and care is focused on the ill patient. Inspired and informed by Julie's recent experiences, A Carer's Chaos is a unique memoir that will appeal to readers facing a similar situation.
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