The Official Patient's Sourcebook on Tuberous Sclerosis - A Revised and Updated Directory for the Internet Age (Electronic book text)

This sourcebook has been created for patients who have decided to make education and Internet-based research an integral part of the treatment process. Although it gives information useful to doctors, caregivers and other health professionals, it also tells patients where and how to look for information covering virtually all topics related to tuberous sclerosis, from the essentials to the most advanced areas of research. The title of this book includes the word official. This reflects the fact that the sourcebook draws from public, academic, government, and peer-reviewed research. Selected readings from various agencies are reproduced to give you some of the latest official information available to date on tuberous sclerosis. Following an introductory chapter, the sourcebook is organized into three parts. PART I: THE ESSENTIALS; Chapter 1. The Essentials on Tuberous Sclerosis: Guidelines; Chapter 2. Seeking Guidance; Chapter 3. Clinical Trials and Tuberous Sclerosis; PART II: ADDITIONAL RESOURCES AND ADVANCED MATERIAL; Chapter 4. Studies on Tuberous Sclerosis; Chapter 5. Patents on Tuberous Sclerosis; Chapter 6. Books on Tuberous Sclerosis; Chapter 7. Multimedia on Tuberous Sclerosis; Chapter 8. Periodicals and News on Tuberous Sclerosis; Chapter 9. Physician Guidelines and Databases; Chapter 10. Dissertations on Tuberous Sclerosis; PART III. APPENDICES; Appendix A. Researching Your Medications; Appendix B. Researching Alternative Medicine; Appendix C. Researching Nutrition; Appendix D. Finding Medical Libraries; Appendix E. Your Rights and Insurance; ONLINE GLOSSARIES; TUBEROUS SCLEROSIS GLOSSARY; INDEX. Related topics include: Adenoma sebaceum, Bourneville disease, BournevillePringle Syndrome, Epiloia, Phakomatosis TS, Tuberose Sclerosis, Tuberous Sclerosis Complex, Tuberous Sclerosis-1.